Why I Am An Open Book About My Chronic Illness
Even before I found that I had Chronic Neurological Lyme Disease and Co-Infections, I always felt alone. I knew something was medically wrong with me, but no doctor could figure it out. Going through high school feeling like something was “extra” wrong with me was just like a brick being dropped on my already pounding […]
8 Simple Ways To Eat Healthy On a Budget
Chronic illnesses are difficult to manage, because once there, you will have to live with it forever. To ease out your burden, modifying your food intake is key, so it’s important that you look at the choices you need to make when filling out your plate. Do not believe others when they say that switching […]
How To Best Keep Track of Your Medications
Right before my sophomore year of college, I went from being a carefree college student to someone who had to manage anywhere between 15 and 52 pills, supplements, and intravenous medications to push through a PICC line (Peripherally Inserted Central Catheter). This was right after I was diagnosed with Chronic Neurological Lyme disease and co-infections. […]
The Journey of a Young Man With Selective Mutism
Everyone has fears. A fear of the dark, a fear of heights, or even a fear of the unknown can make leading an otherwise normal life difficult. But what if you were afraid not of the dark or of heights—but of other people? What if you were overcome with paralyzing terror and even pushed to […]
Love and Patience: Mother and Daughter Fight Against Lukemia
A mother can do a lot for her daughter. Love her, support her, teach her everything from how to tie her shoes, to doing her hair, to respecting herself and others. It is hard work to raise a daughter, and when life throws you obstacles, it can become even more challenging… Jackie has a beautiful […]
What Should You Do When You Get a Tick Bite?
Image by Lancaster General Health We talked to Dan Wolff – The Tick Man and creator of TickEase – to learn more about what makes ticks “tick” and what you should do when you get a tick bite. We want everyone to understand that the best thing you can do to protect yourself is prevention and education, but […]
Spoonie Stories: It never rains forever and the sun always comes out
Mikayla is no stranger to chronic illness. She gives us a little window into her world, opening up about everything from the hardest part of treatment, to frustration with doctors, to her personal super hero. SHE’S BEEN THROUGH MORE HELL THEN YOU’LL EVER KNOW. BUT, THAT’S WHAT GIVES HER EDGE… YOU CAN’T TOUCH A WOMAN […]
Spoonie Stories: Join the Lyme Community!
This is me: I didn’t see the tick bite or a bulls-eye rash (less than 50% of Lyme patients do). After, many different symptoms started showing up, many different doctors and specialists gave me meds to mask my symptoms. I was misdiagnosed with Lupus…This caused a delay in proper treatment for me, as I was put […]
Spoonie Stories: Share Your Lyme Story Today, So Others Won’t Have To Tomorrow
My name is Bryan, I was born and raised in Rodeo, California (Bay Area) and later moved to Vacaville, California where I live now. I have been bitten by many ticks in my life. I was infected with Lyme and co-infections the first time in 1982-1984 in Pinole, CA and then infected again and nearly died […]
Spoonie Stories: How You Can Raise Money for Lyme Treatments
My name is Heather. And this is my story…. I have been ill for many years, being diagnosed with multiple things, from fibromyalgia, to arthritis, IBS to TMJ… But this past summer (2015) everything got 10x worse. After many months of seeing (even more) specialist after specialist, I made it to a Lyme Literate Medical […]
Spoonie Stories: Autoimmune Diseases & Lyme
Hi, my name is Erika and I am 24 years old and I have been ill all of my life. Symptoms of autoimmune diseases (Perthes Disease, a hip disease, and Vitaligo -a skin pigment disorder) started at an extremely young age, causing problems learning in school and socializing. Then I came down with Lyme Disease […]
Blankets & Hugs for Kids
My name is McKenna, I am 14 years old. I have battled chronic illnesses since the age of 8. I have Fibromyalgia, Hashimoto’s, PCOS, VCD , Chronic Migraines, MTHFR Gene, Hypertension and high heart rate, Asthma, a benign tumor on my liver, & other undiagnosed things. After going through/still going through many tests, procedures, ER […]