Multiple Sclerosis Awareness Month: 5 Facts You Should Know
March is Multiple Sclerosis Awareness Month – intending to raise awareness of this unpredictable and currently incurable central nervous system disease. To raise awareness, we’ve compiled five facts you should know about MS and how to bring awareness. #1: Nearly 1 million Americans will be diagnosed with MS. The National MS Society funded a prevalence […]
Knowing When To Take a Step Back When Living With Chronic Illness
When I tell people I’m sick, they usually think I mean something short-term and contagious like the flu or a stomach bug. If I say I have a chronic illness, they picture conditions like IBS, a bad back, or chronic migraines. The actual reality is all this and more. Yes, and. “I’m sick” I have IBS-like […]
3 Tips for Eating With EDS & Co.
Today we will be addressing the challenges that hypermobile patients can face around food as part of our series on EDS & Co. As a refresher, EDS & Co refers to a cluster of chronic illnesses that have gained awareness over the last several years as being rarely diagnosed rather than rare. These conditions include […]
Ketamine Therapy Changed My Life
In my last blog, I shared about my journey this past year and one of the treatments that have helped me heal – ozone therapy. Another treatment, Ketamine Assisted Psychotherapy (KAP), has made a tremendous difference in my mental health and journey to overcome chronic pain. The purpose of sharing my healing journey is to […]
IV Ozone Therapy for Chronically Ill Patients: A look inside Emily’s newest treatment
Hi Friends in the Fight, Your support during the last few years has been essential to my journey towards feeling Mighty Well for myself. In honor of how far my body has come in the past year, I wanted to share with the Mighty Well community the treatments that have helped me heal and take […]
EDS & Co: Symptoms, Treatment & Complications
Friends in the Fight pictured above: @zebratissues, @bendy.bookworm, @classifiedanomoly If you’ve recently been diagnosed with Ehlers-Danlos Syndrome (EDS) or Hypermobility Spectrum Disorder (HSD), odds are it was a long and challenging road to get there. When I was diagnosed in 2017, patients with EDS/HSD struggled with symptoms for an average of 12 years before finding […]
Justin Bieber: Ramsay Hunt Syndrome
Just a couple of years ago, Justin Bieber shared that he was battling Lyme disease. It was rough, but he was able to take the time and treatments needed to heal. He used his platform to advocate about Lyme, even making a documentary about his experience battling mental illness, Epstein Barr, and chronic Lyme. Justin […]
Disability and (In)Visibility: Not All Disabilities Are Visible
This week was the start of Disability Pride Month. We’ve loved seeing posts from our Friends in the Fight sharing their own stories of disability, both the challenges and the pride! One theme that comes up a lot in lived experiences of disability is the nuances of visibility. What makes some disabilities visible? Whether from physical markers, […]
Myasthenia Gravis Awareness Month
June is Myasthenia Gravis Awareness Month. If you have never heard of MG, you are not alone! We reached out to Friend in the Fight Katie McCurdy to shed some light on this autoimmune condition that affects tens of thousands of Americans. Katie McCurdy is an autoimmune patient, designer, and founder of Pictal Health, a […]
Body Image and Mental Health in the Time of Covid
Each year around June, I notice a smidge of angst rising in a small corner of my mind. The lingering chill of winter in New England is finally fading and, while I am here for it, the rising temperatures come with some baggage. Heat is my #1 trigger for symptoms, both from POTS and MCAS. […]
4 Tips to Foster Disability Inclusion in the Workplace
Diversity inclusion in the workplace can have benefits for all involved. Not only does it make our society more equitable, but having diverse perspectives – and listening to those voices – is good for business. We all bring different experiences and strengths and are mightier together™. Wanting to be more inclusive is wonderful, but hiring […]
Halsey Celebrates New Diagnoses
Singer-songwriter Halsey is all about realness. They have been open about struggles with endometriosis for years. When they had their first baby last July, they publicly spoke about prioritizing time with their son over time spent trying to get back into shape, and posted a gloriously honest video about what postpartum bodies can look and […]