How I Pack My IV Infusion Backpack
Hi! My name is Jordyn, and you may have seen me on Mighty Well’s social channels (here I am when I had a PICC Line.) I’m 21 and suffer from POTs, Ehlers-Danlos Syndrome, gastroparesis, hypoglycemia, and MCAS. I document my medical journey on Social Media Via TikTok, Instagram, and YouTube! Read on to learn more about […]
15 Things to Consider When Living With a Port
In the fourth installment of our port series, I’ll share my personal tips, essential considerations, and a few complications to watch out for when living with a port. First: a few personal tips from me Second: port access is different depending on your location In our previous blog, I broke down feeling empowered by knowing […]
How To Access Your Implanted Port
In the third installment of our port series, I will break down the most crucial part of having a port: correctly flushing and accessing your implanted port by yourself. I believe patients should be empowered to learn how to access their ports if they are in a mental and/or physical state to do so. Special […]
What Happens After Port Surgery?
In the second part of our port series, I am breaking down a little bit of what happens after port surgery. A critical part of having a port is caring for the incision site after placement. My experience with getting a port implanted was far more painful than getting a PICC, primarily due to the […]
What is an Implanted Port? A Closer Look
Over the last ten years, I’ve had three PICCs, an implanted port, and numerous peripheral IVs for various infusion therapies. One of the critical areas that allowed for more freedom in my day-to-day life of living with vascular access was transitioning from a PICC to an implanted chest port. Like me, many patients needing long-term […]
Vascular Access & Life as a Patient: Interview with Emily Levy
When Mighty Well CEO and co-founder Emily Levy was a sophomore in college, she was diagnosed with neurological Lyme disease and required a PICC to facilitate her treatment. This PICC was the first of many vascular access devices Emily has depended on and, unfortunately, Lyme was only the first of many diagnoses to come. Despite […]
Meet Mighty Fighter, Betti Grab: Vascular Access Specialist of 25 Years with Atypical Anemia
In this Mighty Fighter Series, we feature amazing warriors from around the world who have experienced health setbacks. They share with us their challenges and triumphs to inspire fellow Mighty Fighters. This month we are featuring Betti Grab, a 25-year Vascular Access Specialist.
What Is the Best Option for Vascular Access?
If you’re like me, you’ve probably been overwhelmed by the number of medical terms and devices available for vascular access. You may have even splurged on PICC Line Covers before even knowing, or at least having an idea of, what type of vascular access device you should get. It’s essential to know the different types […]
6 Tips for Living Your Best Life With a Port-A-Cath
Hey, there! I have Lyme Disease and postural orthostatic tachycardia syndrome (POTS) and as a result, have a port for my treatments. I do 4 hours of IV infusions every day through my port. I have had my port for about 8 months now and it has become such a big part of my life that […]
PICC Line vs. Port: Making The Best Choice For You
Is it time to decide which medical device is right for you? There are a lot of reasons why patients may need to get a central line inserted. Sometimes patients are given the option to choose between a PICC line vs. port, but before making your big decision, it’s important to know the facts about […]
My Illness may have my body, but it does not have me
“Chronic illness is one of the most challenging things I’ve ever had to go through in my life. It often feels nearly impossible to wake up every morning and continue the fight. There have been so many times throughout my journey where I didn’t want to fight anymore, wanted to give into my illness– let my body win.”
LymeLight: How Lyme Affected my High-School Experience
Do you think high-school can sometimes be a burdensome experience for teenagers? Try adding Lyme into the mix. Recently, we had the pleasure of hearing from Christina Womble, a Lyme Warrior from Connecticut who has been suffering from an undiagnosed case of this disease for more than a decade, and yet was only accurately diagnosed last year! Does this […]