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Mighty Well

Chronic IllnessLyme Disease

Why I Am An Open Book About My Chronic Illness

by Emily Levy November 22, 2016July 10, 2018
written by Emily Levy
Emily-back.jpg

Even before I found that I had Chronic Neurological Lyme Disease and Co-Infections, I always felt alone. I knew something was medically wrong with me, but no doctor could figure it out.

Going through high school feeling like something was “extra” wrong with me was just like a brick being dropped on my already pounding head. When I was told that what was wrong with me was depression and anxiety, I just wanted to tell people so they would understand. However, because of the social stigma related to depression, I knew I should keep it to myself if I didn’t want to further stand out in high school. I knew other people were suffering in silence, but I didn’t want to be the odd one out.

So when I finally got diagnosed with Chronic Lyme and started to learn about the disease, I wanted to take this negative opportunity and turn it into something positive. I knew that I could positively impact other lives if I could share my story. 

This is why I am no longer afraid to talk about the “hard stuff” that has plagued my life. Want to know how Lyme as affected my relationship with my boyfriend? Sure, I will tell you about that. Want to know how I showered and had to ask people to help me dress when I had a PICC line? No problem. Want to know how having a disease that is not recognized by the CDC has affected my bank account and lifetime earning potential? Fine. 

Ask me anything about living the spoonie life and I will tell you my raw, honest, and earnest truth. 
So go ahead, ask me anything at emily@mighty-well.com.

I look forward to telling you about the time that I had the cute hockey player in my finance class look at me like I was a walking disease…

Got more questions about PICC Line?  Join us in our Friends in the Fight Group to connect with our community. 

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About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

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