5 Things About Lyme That Your Friends and Family May Not Know (Until Now)
Sara has had Lyme for about ten years now, but didn’t have a confirmed diagnosis until the beginning of December 2016. Can you believe it? Unfortunately, many individuals go through this situation. For those who may not know, Lyme disease is one that is living under the radar – there are so many patients out […]
Your Mind Is a Powerful Tool: 6 Lessons for the Chronically Ill
Having a chronic illness comes with a lot of information one often wishes to have known since the beginning of a medical diagnosis. “Toni Morrison said, ‘The function of freedom is to free someone else,’ and if you are no longer wracked or in bondage to a person or a way of life, tell your story. Risk freeing someone else. Not […]
5 Tips For a Successful Life When Living With a Chronic Illness or Disability
Have you ever watched the movie “Kill Bill 2”? If so, do you remember the scene in which Beatrix Kiddo desperately tries to wiggle her toes? Well, that is kind of what I go through… EVERY. SINGLE. MORNING! I have a chronic illness in my peripheral nervous system, and it has affected my muscles too. […]
Creating Meaning and Purpose While Living With Chronic Illness
Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence. Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at […]
A Multicultural Love Story With a Taste of Lyme
Here’s a story that will throw you through a cultural loop. My mother was born Irish Catholic and my father is an Ashkenazi Jew. I grew up in Rhode Island, USA, knowing that I was in some way Jewish, but I never celebrated that fact until I was given the gift of Birthright when I […]
Why I Cancel Plans Because of My Chronic Illness
They say that tomorrow is another day, but with chronic illness, you are never going to know how you feel day to day. That is why we sometimes have to cancel, reschedule, or just put our hand up and say ‘not today’.
A Fighter’s Journey: Living With a Rare Illness
I’ve pressed the delete button on my keyboard a million times by now… (why you ask) That’s what a writer aspires for. A statement left unanswered, and by the end to be resolved. As an avid writer, you wish to be interesting, unusual and unique. Things I wish not so much to be as a […]
It’s Never Too Early to Test For Lyme Disease & Co-infections
While working nights at the clinic, there would be moments when my mind would go blank in the middle of a sentence. I began struggling to remember words as simple as “scissors.” I thought I was just adjusting to working overnights. My parents noticed I would space out in the middle of conversations, and most days, I walked around like a zombie. I became so tired that if I wasn’t at work I would be sleeping. I was irritable and depressed but still, I chalked it up to working overnight.
The Art of Storytelling in Chronic Illness
Dana was diagnosed with myelodysplastic syndrome at the age of 18. She was a young, artistic, field hockey player that was just hit with a hard diagnosis. She attended a talk with a cancer survivor when her family member connected her with Dr. Angela Cooke-Jackson. Dr. A thought it would be helpful and fulfilling if Dana shared […]
“Adulting” with Lyme Disease
This summer I was supposed to start “adulting.”
5 Reasons to Be Grateful For Your Chronic Illness
Chronic illness is definitely tough most days… However, it can also make you very grateful for what you do have. Since we have to live with it either way, we might as well make the best of it! Personally, having Lyme Disease and living with a PICC line has given me these 5 reasons to be grateful for […]
Why I Have Chosen to #LiveMightyWell
Recently, I was reminded on facebook that it’s been three years since my initial Chronic Lyme disease diagnosis. I had just returned from teaching entrepreneurship in Rwanda with Babson College and my doctor called me to tell me that as suspected, my Lyme and co-infections tests came back positive (after an initial false negative from the traditional CDC test).