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Chronic IllnessLyme DiseasePICC Line

Creating Meaning and Purpose While Living With Chronic Illness

by Emily Levy December 5, 2016July 9, 2018
written by Emily Levy
Screen Shot 2016-12-04 at 2.17.09 PM.png

Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence.

Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience.

In essence, that it what it is like being a Boss Lady with chronic illness – in my case, Chronic Lyme and Co-Infections (including babesia, Bartonella, and a virus).

Most of the time, all you want to do is to take a nap and curl up with a cozy blanket and a cup of tea, but wait…an order just came in…a skype call with a potential partner, and or a crisis at the manufacturer just popped up. It never ends!

How do I manage it all? I really don’t know. What I do know is there is some drive inside of me that makes me get my ass off the couch and keep going. Sure, I could give into my illness; I could become a slave to Lyme disease and the care and management of my PICC line.

But no, that is not how I want to live my life. I want to live a life of purpose and to create hope and thoughtfulness for others like me. I want to inspire those who cannot have the luxuries in life that I do. I want others with chronic illness to know that they can do something about their situation. Even if it is just from their computer and couch.

I am probably pushing my body beyond its limits and I should slow down. But somehow, I can’t. I push my body just as I push medication into my PICC line. I may have to take a nap during the middle of the day or plan my day around my naps, but I keep going.

Just because I am sick doesn’t mean I have to live a sick life. I can create meaning and purpose through inspiring others.

 

 Getting ready to pitch Mighty Well at the Babson Breakaway Challenge 2016, with my Benji PICCPerfect Cover!

Got more questions about PICC Line?  Join us in our Friends in the Fight Group to connect with our community. 

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The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

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