Creating Meaning and Purpose While Living With Chronic Illness

by Emily Levy
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Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence.

Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience.

In essence, that it what it is like being a Boss Lady with chronic illness – in my case, Chronic Lyme and Co-Infections (including babesia, Bartonella, and a virus).

Most of the time, all you want to do is to take a nap and curl up with a cozy blanket and a cup of tea, but wait…an order just came in…a skype call with a potential partner, and or a crisis at the manufacturer just popped up. It never ends!

How do I manage it all? I really don’t know. What I do know is there is some drive inside of me that makes me get my ass off the couch and keep going. Sure, I could give into my illness; I could become a slave to Lyme disease and the care and management of my PICC line.

But no, that is not how I want to live my life. I want to live a life of purpose and to create hope and thoughtfulness for others like me. I want to inspire those who cannot have the luxuries in life that I do. I want others with chronic illness to know that they can do something about their situation. Even if it is just from their computer and couch.

I am probably pushing my body beyond its limits and I should slow down. But somehow, I can’t. I push my body just as I push medication into my PICC line. I may have to take a nap during the middle of the day or plan my day around my naps, but I keep going.

Just because I am sick doesn’t mean I have to live a sick life. I can create meaning and purpose through inspiring others.


 Getting ready to pitch Mighty Well at the Babson Breakaway Challenge 2016, with my Benji PICCPerfect Cover!

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