How I Pack My IV Infusion Backpack
Hi! My name is Jordyn, and you may have seen me on Mighty Well’s social channels (here I am when I had a PICC Line.) I’m 21 and suffer from POTs, Ehlers-Danlos Syndrome, gastroparesis, hypoglycemia, and MCAS. I document my medical journey on Social Media Via TikTok, Instagram, and YouTube! Read on to learn more about […]
Knowing When To Take a Step Back When Living With Chronic Illness
When I tell people I’m sick, they usually think I mean something short-term and contagious like the flu or a stomach bug. If I say I have a chronic illness, they picture conditions like IBS, a bad back, or chronic migraines. The actual reality is all this and more. Yes, and. “I’m sick” I have IBS-like […]
Accessing Medical Supplies
Mighty Well was created when Emily Levy, our co-founder, was instructed to cover her new PICC line with a cut sock. She set out to find a better option and – when that failed – created the PICCPerfectⓇ PICC line cover! This has been our mission from day one: to create the products we wish […]
Best Tricks To Navigate Tube Feeding On the Go Like a Pro
With any chronic illness, going out can feel daunting. What if something happens that triggers my symptoms? What if I can’t take care of my body’s needs the way I can at home? Or what if I encounter people who don’t understand or actively make me feel worse about being sick or disabled? This can be a […]
Resource Guide to Conquer Life With a Feeding Tube
New to the world of feeding tubes? Looking for some feeding tube resources? Here are our favorites to get you going: Understanding the types Before needing a feeding tube, you may not have known that there are several different types! Each one is used for different purposes. To understand the different names, here’s what you need to […]
6 Feeding Tube Complications and How to Avoid Them
Feeding tubes can be a lifesaver – literally. They enable our bodies to absorb the nutrients we need to heal. While tubes are wonderful inventions, they can also come with a risk of complications. So if you are going down the enteral nutrition road, here are a few feeding tube complications to look out for and […]
Tubie Gear: Our Top Recommendations
Getting a feeding tube comes with a lot of baggage — literally! Administering feeds requires a lot of tubie gear. There are the staples – feeds, pump, skin barrier, and cleaner – that are crucial to tube feeds. But many other products can make life so much easier! We’ve asked our tubie friends what gear […]
What to Expect When You Get Your First Feeding Tube?
No one expects to end up with a feeding tube, and your first experience can come with a large learning curve. We know the feeling, and want to help lower these barriers! Here is what we wish we knew going in: Feeding tube placement Tube placement is often the scariest part. Depending on the type of tube, […]
What Is the Difference Between Tube Feeding and TPN?
We often think of eating as an integral part of human existence. But for many people with GI challenges, eating and drinking may not be the best way to get nutrition. If you find yourself facing alternative nutritional support, it can feel overwhelming! There are many resources available, however, and many other people going through the same challenges. Here […]
How the First Tube-Fed Model to walk NYFW Turned Sickness into Strength
We all have heard of the iconic fashion event, the New York Fashion Week. Held twice a year, models, designers, hair and make-up artists, and photographers flock to the Big Apple to showcase their talents. This overflow of art and talent is such a spectacle to watch. So many spend their life dreaming of even […]
My Illness Has Made Me Stronger
My name is Emily Pierri. I am 17 years old, and I have been chronically ill for 8 years. My diagnoses are Type One Diabetes, Endometriosis, ARD (Adhesion Related Disorder), POTS (Postural Orthostatic Tachycardia Syndrome), Gastroparesis and MCAS (Mast Cell Activation Syndrome). One of the hardest things about living with multiple chronic illnesses is the […]
How I Learned To Love My Feeding Tube
My name is Gracie Gardner, I’m 16 years old and living with Idiopathic Gastroparesis. Living with this disorder is definitely not easy to cope with. I’ve had a PICC line along with countless NJ tubes (Nasojejunal feeding tube) and several NG tubes (nasogastric tube). One of the most challenging aspects of having life-sustaining tubes stuck to […]