My Search for a Diagnosis – and for the Support of the Doctors
Over the course of the last five months, as a mere teenager, I’ve been diagnosed with a number of new chronic illnesses: Dysautonomia (POTS), Chronic Fatigue Syndrome and Gastroparesis.
A Stronger More Confident Me
“My diagnosis date I remember not as the day my life became sealed with an expectation date, but as the day I truly started living. Since stepping down from my career I have become a support group leader, patient advocate, public speaker, and illness blogger. These new ventures have opened incredible doors in my life […]
Advice From a Friend Living with Gastroparesis & Feeding Tubes
My name is Shannon, I’m 22, and I’ve suffered from a chronic illness my whole life. I have Gastroparesis, which causes the muscles and nerves in the stomach to not function properly, causing my stomach to not empty properly. I also have dysmotility of the small intestine causing even further GI problems. Over the years, […]
Spoonie Stories: Advocating for People with Disabilities
Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.