Mighty Well
  • Shop
  • Home
  • Friends in the Fight
    • Friends in the Fight

      Diagnosed With Diabetes… Now What?

      February 17, 2021February 17, 2021

      Friends in the Fight

      Body Positivity Month

      February 10, 2021February 11, 2021

      Friends in the Fight

      World Cancer Day: 5 ways to support someone…

      February 3, 2021February 3, 2021

      Friends in the Fight

      We Are Mighty Well

      January 22, 2021January 22, 2021

      Friends in the Fight

      Making the Invisible Visible

      December 16, 2020December 16, 2020

  • Chronic Illness
    • Chronic Illness

      Diagnosed With Diabetes… Now What?

      February 17, 2021February 17, 2021

      Chronic Illness

      Body Positivity Month

      February 10, 2021February 11, 2021

      Chronic Illness

      Diabetes Resource Guide

      February 5, 2021February 5, 2021

      Chronic Illness

      World Cancer Day: 5 ways to support someone…

      February 3, 2021February 3, 2021

      Chronic Illness

      Mighty Well Staff Picks

      January 27, 2021January 27, 2021

  • General Wellness
    • General Wellness

      5 Healthy Meals You Can Cook on the…

      February 24, 2021February 24, 2021

      General Wellness

      Spread love, not germs, this Valentine’s Day

      February 12, 2021February 12, 2021

      General Wellness

      New CDC Guidelines on Double Masking

      February 11, 2021February 11, 2021

      General Wellness

      Body Positivity Month

      February 10, 2021February 11, 2021

      General Wellness

      Looking Towards the New Year With Hope and…

      December 30, 2020December 30, 2020

  • Shop
  • Home
  • Friends in the Fight
    • Friends in the Fight

      Diagnosed With Diabetes… Now What?

      February 17, 2021February 17, 2021

      Friends in the Fight

      Body Positivity Month

      February 10, 2021February 11, 2021

      Friends in the Fight

      World Cancer Day: 5 ways to support someone…

      February 3, 2021February 3, 2021

      Friends in the Fight

      We Are Mighty Well

      January 22, 2021January 22, 2021

      Friends in the Fight

      Making the Invisible Visible

      December 16, 2020December 16, 2020

  • Chronic Illness
    • Chronic Illness

      Diagnosed With Diabetes… Now What?

      February 17, 2021February 17, 2021

      Chronic Illness

      Body Positivity Month

      February 10, 2021February 11, 2021

      Chronic Illness

      Diabetes Resource Guide

      February 5, 2021February 5, 2021

      Chronic Illness

      World Cancer Day: 5 ways to support someone…

      February 3, 2021February 3, 2021

      Chronic Illness

      Mighty Well Staff Picks

      January 27, 2021January 27, 2021

  • General Wellness
    • General Wellness

      5 Healthy Meals You Can Cook on the…

      February 24, 2021February 24, 2021

      General Wellness

      Spread love, not germs, this Valentine’s Day

      February 12, 2021February 12, 2021

      General Wellness

      New CDC Guidelines on Double Masking

      February 11, 2021February 11, 2021

      General Wellness

      Body Positivity Month

      February 10, 2021February 11, 2021

      General Wellness

      Looking Towards the New Year With Hope and…

      December 30, 2020December 30, 2020

Mighty Well

Chronic Illness

Spoonie Stories: Advocating for People with Disabilities

by Miranda Diller H. October 5, 2016July 9, 2018
written by Miranda Diller H.
Spoonie Stories: Advocating for People with Disabilities

Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.

I’ve fought through joint surgeries, and worked my way up from a wheelchair twice: each time I had to learn how to walk once again. My joints dislocate very easily and are very painful. I do not regulate my own temperature, often overheating to the point at which I pass out. My heart beats way to fast, and when I stand, my blood pressure drops dangerously low, causing blackouts, dizziness and horrible cramps. Triggered by my body sensing there isn’t enough blood; these low-blood-volume cramps are so strong they can rip muscles, dislocate joints or even break bones.

I have good days and bad days causing most people to not believe I’m so sick, even when they know I am. Seeing me walking one day and in a wheelchair the next makes people think I’m faking. We are all warriors, and survivors, but most importantly, we are all human beings.

The following videos are from my presentation on the social stigma surrounding disabilities of all kinds. The context of those videos is that I, myself have been treated badly because of my disability. (I’m the young girl with black curly hair in the videos.)

 

 

 

Join us in our Friends in the Fight Group to share your stories and connect with our community.

 

Be Your Own AdvocateGastroparesisinvisible illnessesLyme Into LemonaidPOTS
0
FacebookTwitterPinterestEmail
Miranda Diller H.

previous post
Lyme Disease: The Hidden Epidemic
next post
Protect Your PICC Line: Shower, Exercise & Daily Life Tips

You may also like

Conversations with Jimi Olaghere: Entrepreneur, Father, and Sickle...

February 21, 2020

How to Change Your PICC Line Dressing

March 25, 2019

Reflecting at the End of a Decade

December 30, 2019

Conversations with Lisa Cipkar: Patient and Practitioner

January 20, 2020

Experiencing PICCPerfect With Skin Sensitivities

October 2, 2020

Traveling with a chronic illness: tips for packing...

December 17, 2019

Adaptive Athletics, Giving Back, and Turning Passion into...

August 21, 2019

Spoonie Stories: Coming to Terms With Your Disability

October 6, 2016

Spoonie Stories: Autoimmune Diseases & Lyme

October 11, 2016

How Body Image Affects Our Self-Esteem and Mental...

August 13, 2019

Leave a Comment Cancel Reply

Save my name, email, and website in this browser for the next time I comment.

About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

Keep in touch

Facebook Twitter Instagram

Instagram

No images found!
Try some other hashtag or username

Recent Posts

  • 5 Healthy Meals You Can Cook on the Road with a Kitchenette

    February 24, 2021
  • Diagnosed With Diabetes… Now What?

    February 17, 2021
  • Spread love, not germs, this Valentine’s Day

    February 12, 2021
  • New CDC Guidelines on Double Masking

    February 11, 2021
  • Body Positivity Month

    February 10, 2021

Categories

  • Adaptive Wear
  • Chronic Illness
  • Featured
  • Friends in the Fight
  • General Wellness
  • Healthy Work Environments
  • Lyme Disease
  • Medical Devices
  • Mightier Together
  • Mighty Models
  • PICC Line
  • Popular Posts
  • The Undefeated
  • Treatment and Care
  • Uncategorized

Tags Cloud

Active Lifestyle Adulting Best Fit for Your Lifestyle Be Your Own Advocate blm Chronic Illness coronavirus coronoavirus covid-19 Diabetes Disabilities Dysautonomia Family Feeding Tubes Fibromyalgia Gastroparesis holidays invisible illnesses Living Mighty Well Living With a PICC Living with a Port LLMD lyme disease Lyme Into Lemonaid Lyme Literate Doctors MedPlanner mental health Mental Illness mighty mask Mighty Pack mighty well mask Misdiagnosed Mom with Lyme New Years Organization Tips PICC PICC line cover PICC Line Dressing Change PICCPerfect POTS Prevention Self-love Support Systems TPN trans black lives matter

Our Story

Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • 5 Healthy Meals You Can Cook on the Road with a Kitchenette

    February 24, 2021
  • Diagnosed With Diabetes… Now What?

    February 17, 2021
  • Spread love, not germs, this Valentine’s Day

    February 12, 2021

Join the Fight

Mighty Well's Facebook Page

Find Us on Instagram

No images found!
Try some other hashtag or username
  • Facebook
  • Twitter
  • Instagram

Mighty Well © 2018 All Rights Reserved


Back To Top