Gift Ideas For Chronic Illness Warriors
From new PICC patients, chronic illness warriors on the go, and all the Friends in the Fight™ in between, we’ve got the perfect gifts for everyone this holiday season. Whether you are looking for a comforting present for a sick friend, someone who’s homebound, or a care package for a sick mom – pick one […]
How I Pack My IV Infusion Backpack
Hi! My name is Jordyn, and you may have seen me on Mighty Well’s social channels (here I am when I had a PICC Line.) I’m 21 and suffer from POTs, Ehlers-Danlos Syndrome, gastroparesis, hypoglycemia, and MCAS. I document my medical journey on Social Media Via TikTok, Instagram, and YouTube! Read on to learn more about […]
15 Things to Consider When Living With a Port
In the fourth installment of our port series, I’ll share my personal tips, essential considerations, and a few complications to watch out for when living with a port. First: a few personal tips from me Second: port access is different depending on your location In our previous blog, I broke down feeling empowered by knowing […]
What is an Implanted Port? A Closer Look
Over the last ten years, I’ve had three PICCs, an implanted port, and numerous peripheral IVs for various infusion therapies. One of the critical areas that allowed for more freedom in my day-to-day life of living with vascular access was transitioning from a PICC to an implanted chest port. Like me, many patients needing long-term […]
4 Tips on Supporting a Chronically Ill Friend or Loved One
We know firsthand that supporting a chronically ill friend can sometimes be challenging – many of us at Mighty Well are that friend. One of the contributors of Suffering the Silence, Cassandra Rush, a chronic illness warrior, hit the nail on the head when she shared what it’s like to be invited out by friends: […]
6 Tips for Living Your Best Life With a Port-A-Cath
Hey, there! I have Lyme Disease and postural orthostatic tachycardia syndrome (POTS) and as a result, have a port for my treatments. I do 4 hours of IV infusions every day through my port. I have had my port for about 8 months now and it has become such a big part of my life that […]
Weakness Is Not Quitting
Waking up with a chronic illness every day is the usual set of problems, the symptoms may change but the limitations are fairly consistent. The beginning and end of the day are hardest for me. When I wake up, I know I have another day of the same fight, the same disease, and when I […]
Four Tips For Maintaining Resilience When Battling a Chronic Illness
Emma Widmar was a 17-year-old student who was diagnosed with Mast Cell Disease and POTS in 2016. From symptoms such as swelling due to an allergic reaction to her own hormones to being unable to digest food by mouth, this girl has seen it all! Luckily she was able to have a feeding tube placed […]
A Different Form of Normal
Hey Everyone, I was born with Short Bowel Syndrome. I am one of those awkwardly blessed human beings that has had the opportunity to grow up with my illness. Oddly enough, I don’t consider myself to have a disability. In fact, I don’t consider myself to be disabled. In my eyes, I’m normal. I’m ready to […]
5 Reasons to Be Grateful For Your Chronic Illness
Chronic illness is definitely tough most days… However, it can also make you very grateful for what you do have. Since we have to live with it either way, we might as well make the best of it! Personally, having Lyme Disease and living with a PICC line has given me these 5 reasons to be grateful for […]
Why I Am An Open Book About My Chronic Illness
Even before I found that I had Chronic Neurological Lyme Disease and Co-Infections, I always felt alone. I knew something was medically wrong with me, but no doctor could figure it out. Going through high school feeling like something was “extra” wrong with me was just like a brick being dropped on my already pounding […]
8 Simple Ways To Eat Healthy On a Budget
Chronic illnesses are difficult to manage, because once there, you will have to live with it forever. To ease out your burden, modifying your food intake is key, so it’s important that you look at the choices you need to make when filling out your plate. Do not believe others when they say that switching […]