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Mighty Well

  • Shop
    • Shop All
    • PICC Line Protectors
    • Fluid Motion Backpack
    • Self Care Case
    • FSA/HSA Eligible
    • Mighty Merch
    • Wholesale
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Category:

Chronic Illness

    Emily sitting at an infusion clinic, wearing the PICCPerfect® Active PICC Line Cover in Mist.
    Chronic IllnessLyme DiseaseMightier TogetherTreatment and Care

     IV Ozone Therapy for Chronically Ill Patients: A look inside Emily’s newest treatment

    by Emily Levy August 12, 2022August 18, 2022
    written by Emily Levy

    Hi Friends in the Fight,

    Your support during the last few years has been essential to my journey towards feeling Mighty Well for myself. In honor of how far my body has come in the past year, I wanted to share with the Mighty Well community the treatments that have helped me heal and take care of myself.

    For those who haven’t been following my journey, I hope this update will help you feel less alone in navigating the healthcare system:

    While my Lyme was (finally!) in remission, doctors confirmed what I had been feeling all along – years of fighting this bacteria had deeply affected my body and additional treatment would be required to fully recover.  Not only this, but we discovered there were other infections wreaking havoc that had previously gone undetected.  I chose to step back from day-to-day work and to prioritize the rest my body needed.  I shared this with all of you because I am proud of my choice to take time for healing and wanted to empower others to listen to their bodies.

    I am so grateful to have had this time to focus on my health and, Friends, it’s working!  Slowly but surely, I am feeling myself come back to the version of me that could take on the world with energy and positivity.  Many of you have asked about the treatments that are helping so much.  I believe strongly in transparency to break down stigma and share knowledge, so while I am still on the road to healing, I wanted to share an update about what has gotten me to where I am right now.

    You can find general tips on building up a care team here, which include some of the alternative therapies I’ve been receiving.  I want to take a moment, though, to dive a bit deeper into two therapies that have changed the game for me: ozone and ketamine.

    what is ozone therapy?

    On the recommendation of my functional medicine doctor, I began ozone IV therapy about a year and a half ago.  I had undergone IV antibiotic therapy on and off for five years and felt that it had taken a toll on my gut.  I felt that I received all of the benefits that I could from traditional antibiotic therapies. Thus, I was interested in ozone as a different way to address the pathogens that I still had lingering in my body.

    In my research and direct experience, ozone IV therapy is very regenerative for the body’s cells, helping them clear out any toxins and rebuild.  There are different dosage levels, so starting at a low dose (called one pass) is important.  You can build up to ten pass.  I am currently at a seven.  Most people will have herx reactions, so it’s important to start slowly and take precautions.  My doctor recommended using charcoal binders, drinking celery juice, or eating detoxifying foods afterward, so that the dead pathogens can be flushed out.  

    There are a few ways it can be administered, such as through the ears or nose. Since I had a chest port for IV access at that time, I felt that IV ozone was the best option for me.  (In the picture above, I’m receiving it through a peripheral IV, which I do when it’s the only IV needed that week).  To start the treatment, the IV nurse takes about a pint of blood, infuses it with ozone gas (O3), and then administers it back into my body.  Sometimes they also run it through something called a UVBI light – as we know from Covid precautions in public buildings, UV light can be a powerful tool for killing pathogens.  You can receive these treatments in specialized IV clinics (I go to the BioMed Center), but will likely need to pay out of pocket.  Some people who cannot afford IV ozone buy machines to use at home.  In total, the process takes me about 45-60 minutes.

    Click here to explore more about ozone

    final thoughts

    If you have questions about my experience with Ozone, feel free to DM me on instagram @mightywell_emily!

    Our next blog will focus on ketamine as a treatment for depression.  These therapies are not the right fit for everyone, but I hope by sharing my own experiences that others can learn more and explore these options with a doctor.  Perhaps this openness can help more people find the healing they desperately need.  

    We are mightier together!

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  • When Doctors Assume You Have an Eating Disorder

    by Ariela Paulsen July 28, 2022December 30, 2022

    Any society, or really any group of people, will carry biases.  We are taught – subconsciously much of the time…

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  • Confused About Feeding Tubes? Breaking Down the Types

    by Ariela Paulsen July 21, 2022January 2, 2023

    If you’ve recently been told that you need a feeding tube, you likely have many emotions and questions.  Know that…

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  • Justin Bieber: Ramsay Hunt Syndrome

    by Ariela Paulsen July 14, 2022July 14, 2022

    Just a couple of years ago, Justin Bieber shared that he was battling Lyme disease.  It was rough, but he…

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  • Disability and (In)Visibility: Not All Disabilities Are Visible

    by Ariela Paulsen July 7, 2022February 1, 2023

    This week was the start of Disability Pride Month. We’ve loved seeing posts from our Friends in the Fight sharing…

    1 FacebookPinterestEmail
  • Disability Pride Month

    by Ariela Paulsen June 30, 2022June 30, 2022

    Featured above: Friends in the Fight celebrating Disability Pride — @survival_of_the_sickest, @maddiexgordon, @taylorthetransgineer, @kristendoornbos, @thedisabledhippie As June winds down, I…

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  • Myasthenia Gravis Awareness Month

    by Ariela Paulsen June 22, 2022June 22, 2022

    June is Myasthenia Gravis Awareness Month.  If you have never heard of MG, you are not alone!  We reached out…

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  • Accessing Medical Supplies

    by Ariela Paulsen June 10, 2022June 15, 2022

    Mighty Well was created when Emily Levy, our co-founder, was instructed to cover her new PICC line with a cut…

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  • 4 Tips to Foster Disability Inclusion in the Workplace

    by Ariela Paulsen June 3, 2022March 17, 2023

    Diversity inclusion in the workplace can have benefits for all involved.  Not only does it make our society more equitable,…

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Hi, We're Mighty Well.

At Mighty Well, we understand what it means to live with a disability, chronic condition, and illness. Like our community of Friends in the Fight, we are patients and caregivers -and it is the daily challenges we face together that drive us to create products that solve problems and make life easier, safer, more confident, and dignified. We provide outstanding customer support, peer-to-peer feedback, and on-demand digital learning to ensure our customers can access the best-in-class products, support, and community we wish we’d had.

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