Meet Friend in the Fight™, Jasmine Szantyr: Tick-borne disease warrior, advocate, and entrepreneur
In this Friends in the Fight™ Series, we feature amazing warriors from around the world who have experienced health setbacks. This month, we are featuring Jasmine Szantyr. Please tell us a bit about yourself (not related to your illness). I’m Jasmine! 28, wife, mom to fur babies, advocate & entrepreneur. What is your illness? When did you […]
Life, Illness, and Impact: Conversations with Julian Van Horne
We covered a lot of ground during our Facebook Live interview with Julian Van Horne last week. Julian is an EDS warrior and spoke about the power of self advocacy and pursuing your passion. He and Emily also discussed finding work that focuses on empowering people in the chronic illness community, navigating relationships with chronic […]
Meet Mighty Model: Sarah Dame, Rare Disease Advocate and Ehlers Danlos Syndrome Warrior
Our Mighty Well Models all have direct, lived experience with chronic illness, either as a patient themselves or as a caregiver. Today we’re excited to introduce you to Mighty Model Sarah Dame, a true advocate for the chronic illness community! You’ve likely seen her modeling our Mighty Pack over social, or on our website! Here […]
Mighty Well & Global Lyme Alliance – Fighting for a Cure
At Mighty Well, we’re committed to supporting the nonprofits and foundations that share our mission to help patients access the support, relationships, and resources they need to thrive while living with a serious or chronic illness. That’s why every season, we will be partnering with a nonprofit that is working to find cures, improve quality […]
Tips for Getting Better Sleep When You Suffer from Chronic Pain
Our sleep is a key component of our overall health and wellbeing. When we lose sleep, we suffer in ways far beyond just having a tough time getting up the next morning. The real effects of sleep deprivation are quite frightening and enough of a warning to make you want to head to bed immediately to […]
Meet Mighty Mentee and Epilepsy Warrior: Zachary
Back in 2012, seven year old Zachary received news about a very special surprise. The Rhode Island based nonprofit, Children’s Wishes, was going to grant his wish to go to Disney World. As a young child, Zach was diagnosed with Epilepsy and P.A.N.D.A.S. (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal infections) and spent much of his […]
Thriving Through Transition: Conversations with Kirsten Curtis
Just last week, Kirsten Curtis joined Emily on our monthly Facebook Live broadcast to discuss how to cope with people who don’t understand chronic illness, especially during times of transition – like starting college or a new job. Though Kirsten lives with Crohn’s Disease and Emily lives with Neurological Lyme, Emily sees a lot of […]
Long-term Vascular Access and My Journey to Healing
To Our Friends in the Fight, Like you, I have spent years battling my health, experiencing success and hardship along the way. My experience as a patient inspired me to co-found Mighty Well, and since then, I have spent my career passionately advocating for the rights, feelings, and voices of patients facing chronic and short-term […]
Plot Twist: Navigating Cancer Treatment with a PICC Line
On November 30, 2018, Sydney Liles was diagnosed with Mediastinal Large B-cell Lymphoma. Now, she tells her story of experiencing cancer with a PICC line. “You know how life is going along and everything is good, really good.” Sydney writes in her blog, “You have a great job, live on your boat, you’re empty nesters, […]
Meet Mighty Model, Max Logan: Athlete, Lyme patient, & Mighty Well Intern
Like our models, everyone on the Mighty Well team has direct, lived experience with chronic illness, either as a patient themselves or as a caregiver. Today we’re excited to feature someone who is a member of the Mighty Well family in more ways than one. Meet Mighty Model Max Logan, one of our Mighty Models […]
Coping Tips and Tricks for People with EDS, and Other Illnesses: Adventures of a Spoonie Zebra
Hello Friends in the Fight! My name is Kiera. I’m 28 years old and have been chronically ill since the age of 10. Living with Myalgic Encephalomyelitis, Ehlers Danlos Syndrome, and other conditions, I’ve been through many ups and downs with my health. I’ve had periods of semi-remission, and a few utter and absolute crashes. […]
Caring For Your Whole Self: Conversations with Ali Moresco
Last week, Emily sat down with Lyme Warrior, professional patient, and general boss-lady Ali Moresco to talk about caring for their whole selves, both mentally and physically, when managing life with a chronic illness. January can be a difficult month for everyone, but it can be especially challenging for those of us struggling with our […]