Mighty Well
  • Shop
  • Learn
  • Journal
  • Join Us
  • Who We Are

Mighty Well

  • Shop
  • Learn
  • Journal
  • Join Us
  • Who We Are
Chronic IllnessFriends in the FightMighty ModelsUncategorized

Meet Mighty Model: Sarah Dame, Rare Disease Advocate and Ehlers Danlos Syndrome Warrior

by Allie Cashel March 29, 2019March 29, 2019
written by Allie Cashel
Meet Mighty Model: Sarah Dame, Rare Disease Advocate and Ehlers Danlos Syndrome Warrior

Our Mighty Well Models all have direct, lived experience with chronic illness, either as a patient themselves or as a caregiver.

Today we’re excited to introduce you to Mighty Model Sarah Dame, a true advocate for the chronic illness community! You’ve likely seen her modeling our Mighty Pack over social, or on our website!

Here are a few highlights of our interview with Sarah…

I strive to see the good, and be real through the hard.

Can you tell us a bit about yourself?

Hi, I’m Sarah! I’m twenty three years old, a part time student, full time patient, and dog mom to my doodle, Welsley. 

I am fighting my illnesses every day and traveling across the east coast for appointments. I am an advocate for others facing medical injustice in the rare disease community. I love to write, travel, and send lots of cards out each week through my unofficial card ministry I call “Project Encourage”. When your sick, getting a card in the mail can turn around your whole day, so I try to bring that joy to others. 

What is your illness? When did you find out?

I have Ehlers Danlos Syndrome, a genetic disorder which affects my connective tissue, and the many co-morbibities that come with that diagnosis, along with Primary Immunodeficiency. My motility disorders cause me to have a feeding and cecostomy tube. It isn’t ideal, but I thank God for modern medicine keeping me alive.

I became very sick at age seven but until age 17 we never really got concrete answers. Thankfully we are now past the searching for answers stage and I am undergoing treatment for what I have.

Do you think your experience with illness has given you strength?

Without a doubt. You learn to push through the pain, find the good in the really hard circumstances, and you become a stronger person through all the advocating you do for yourself and others. 

It makes me a million times more thankful for “good” days, and empowers me to live each day to the fullest. 

After the last five years of pretty constant medical stuff it has inspired me to live differently. I strive to see the good, be real through the hard, and thank God for the very gift of each day- its given me a deeper appreciation for life. 

Thank you Sarah, for modeling for Mighty Well, being our constant Friend in the Fight, and for sharing your story of how you turned sickness into strength.

Do you want to learn more about ways you can get involved with Mighty Well? Join our Friends in the Fight Facebook Group to find community, volunteer opportunities, and helpful resources built empower you on your illness journey.

0
FacebookTwitterPinterestEmail
Allie Cashel

Community Manager at Mighty Well. Do you have a Mighty Well story to share? Do you have a friend who’s strength you want to highlight? Do you have themes or ideas you want to see featured and explored? Join the Friends in the Fight Facebook Group and let us know!

previous post
The Mighty Pack Rocks the Runway
next post
Life, Illness, and Impact: Conversations with Julian Van Horne

You may also like

Spoonie Stories: Autoimmune Diseases & Lyme

October 11, 2016

4 Tips For Reducing PICC Line Pain

March 3, 2021

Meet Hanna Muir – A New Mighty Well...

August 7, 2019

4 Tips for Advocating to Employers Post-COVID

September 20, 2021

Aaron Philip: a model for “all types of...

July 2, 2020

Feeding Tube Awareness Week: Kayla’s Story

February 13, 2020

Q&A With Lyme Warrior and Entrepreneur: Cat Seven

February 10, 2017

5 Tips for Building Your Care Team

October 20, 2021

The Mighty Pack Rocks the Runway

March 28, 2019

Traveling with a chronic illness: tips for packing...

December 17, 2019

About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

Keep in touch

Facebook Twitter Instagram

Instagram

No images found!
Try some other hashtag or username

Recent Posts

  • 3 Tactics For Managing Anxiety Attacks

    May 19, 2022
  • Top 3 Digital Medication Organizers

    May 13, 2022
  • 7 Things I Wish I’d Known About Motherhood With Chronic Illness

    May 5, 2022
  • Self Care Case: What do you carry?

    April 21, 2022
  • 5 Tips for Navigating Chronic Illness With Executive Function Challenges

    April 7, 2022

Categories

  • Adaptive Wear
  • Chronic Illness
  • Featured
  • Friends in the Fight
  • General Wellness
  • Healthy Work Environments
  • Lyme Disease
  • Medical Devices
  • Mightier Together
  • Mighty Models
  • PICC Line
  • Popular Posts
  • Relationships and Support
  • The Undefeated
  • Treatment and Care
  • Uncategorized

Tags Cloud

Adulting Be Your Own Advocate blm Cancer Chronic Illness coronavirus coronoavirus covid-19 Daily Brain Fog Fix Diabetes Dysautonomia EDS feeding tube Feeding Tubes feeding tube supplies Fibromyalgia Gastroparesis holidays how does a feeding tube work immuno hoodie invisible illnesses Living Mighty Well Living With a PICC Living with a Port lyme disease Medications MedPlanner mental health Mental Illness mighty mask Mighty Pack mighty well mask Misdiagnosed neurodiversity New Years Organization Tips PICC PICC line cover PICCPerfect POTS Self-love self care case Support Systems TPN Tube Feeding

Our Story

Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • 3 Tactics For Managing Anxiety Attacks

    May 19, 2022
  • Top 3 Digital Medication Organizers

    May 13, 2022
  • 7 Things I Wish I’d Known About Motherhood With Chronic Illness

    May 5, 2022

Join the Fight

Mighty Well's Facebook Page

Find us on Instagram

mightywell_

One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
Follow on Instagram
  • Facebook
  • Twitter
  • Instagram
  • Pinterest
  • Linkedin

Mighty Well © 2018 All Rights Reserved


Back To Top