Mighty Well
  • Shop
  • Learn
  • Journal
  • Join Us
  • Who We Are

Mighty Well

  • Shop
  • Learn
  • Journal
  • Join Us
  • Who We Are
Chronic IllnessFriends in the Fight

Beautiful Disguise

by Katie Lustig March 15, 2017July 23, 2018
written by Katie Lustig
neurological Lyme Disease
Those of us with chronic mental or physical illness are constantly living in a world of pretend, well at least to the extent that we not only hide our pain from others but also hide the pain from ourselves. I’ve been struggling with Lyme disease and multiple co-infections since age 10 and finally received a diagnosis of neurological Lyme Disease last summer at age 20, the same diagnosis as my mother, who was misdiagnosed for 12 years. Watching my mom power through the pain has taught me how to keep going myself even when it feels unbearable, or when friends and family get “annoyed” with my complaining. I’ve come to the realization that even though my pains may be horrible in certain moments, it doesn’t mean that others aren’t going through their own kind of pain, regardless of how severe it is. Pain is pain. So what keeps me going is my rational mind and faith in myself that I can push through. And believe it or not, we all have the power to make it by. 


Beautiful Disguise

by Katie Lustig

Throbbing,

Aching,

and Robbing of my fragile spine.

I lay here, thinking,

just to pass the time.

But somehow

burning flames

still penetrate my mind.

Anger, frustration—

deep down inside.

Leaving me lonely,

forcing me to hide.

Because if I decide

to cry out my eyes

in front of society’s pitiful guise

then I would be the one in disguise.

You see, I’d be lying

If I said my pains were

worse than your baby’s crying.

Because, simply we’re all just trying

to comprehend why

such awful things happen

to those trying to get by.

 

Join us in our Friends in the Fight Group to connect with our community. 

invisible illnesses
0
FacebookTwitterPinterestEmail
Katie Lustig

previous post
Finding The Good In Bad With Illness
next post
I Lost My “Creative”

You may also like

My Inspiration To Become An RRT

April 5, 2017

Bias in Medicine: 5 Tips to Self-Advocate

August 15, 2019

How Body Image Affects Our Self-Esteem and Mental...

August 13, 2019

Holiday Wishlist

December 4, 2020

Rare Disease Day

February 28, 2021

Able Minded, Unable Body

December 3, 2019

5 Tips for Chronic Pain

July 29, 2021

The Art of Storytelling in Chronic Illness

November 29, 2016

What patients want to know to feel confident...

August 6, 2021

“Adulting” with Lyme Disease

November 25, 2016

About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

Keep in touch

Facebook Twitter Instagram

Instagram

No images found!
Try some other hashtag or username

Recent Posts

  • Myasthenia Gravis Awareness Month

    June 22, 2022
  • Body Image and Mental Health in the Time of Covid

    June 16, 2022
  • Accessing Medical Supplies

    June 10, 2022
  • 4 Tips for Creating a Disability Inclusive Workplace

    June 3, 2022
  • Halsey Celebrates New Diagnoses

    May 26, 2022

Categories

  • Adaptive Wear
  • Chronic Illness
  • Featured
  • Friends in the Fight
  • General Wellness
  • Healthy Work Environments
  • Lyme Disease
  • Medical Devices
  • Mightier Together
  • Mighty Models
  • PICC Line
  • Popular Posts
  • Relationships and Support
  • The Undefeated
  • Treatment and Care
  • Uncategorized

Tags Cloud

Adulting Be Your Own Advocate blm Cancer Chronic Illness coronavirus coronoavirus covid-19 Daily Brain Fog Fix Diabetes Dysautonomia EDS feeding tube Feeding Tubes feeding tube supplies Gastroparesis holidays how does a feeding tube work immuno hoodie invisible illnesses Living Mighty Well Living With a PICC Living with a Port lyme disease MCAS Medications MedPlanner mental health Mental Illness mighty mask Mighty Pack mighty well mask Misdiagnosed neurodiversity New Years Organization Tips PICC PICC line cover PICCPerfect POTS Self-love self care case Support Systems TPN Tube Feeding

Our Story

Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • Myasthenia Gravis Awareness Month

    June 22, 2022
  • Body Image and Mental Health in the Time of Covid

    June 16, 2022
  • Accessing Medical Supplies

    June 10, 2022

Join the Fight

Mighty Well's Facebook Page

Find us on Instagram

mightywell_

One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
Follow on Instagram
  • Facebook
  • Twitter
  • Instagram
  • Pinterest
  • Linkedin

Mighty Well © 2018 All Rights Reserved


Back To Top