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Chronic IllnessFriends in the Fight

I Lost My “Creative”

by Katie Lustig March 20, 2017July 23, 2018
written by Katie Lustig
Neurological disorders
When I was diagnosed with chronic neurological Lyme last may, I lost a part of my identity– my creative drive that truly makes me who I am. Neurological disorders, since they are in your brain and nervous system, can affect the most cherished parts of ourselves. This poem is a realization that I could never truly lose myself to illness, even though at times I may feel like I’ve lost my creativity, I know that it is always there. And no matter what, my illness does not define me.


I Lost My “Creative”

by Katie Lustig

I lost my “Creative”

in May last year— weak

body growing tired

with obsessive fear.

My abusive memories

had no escape.

They burrowed deep

in my brain. Little

spirochetes are

all insane—

sneaky and fierce,

completely untamed.

Spiral-shaped bacteria

drill deep into your soft

brain, like corkscrews

In play-dough—

spiraling with ease,

effortless pain.

They take control of

cognitive functions,

like focus, memory,

and motor speed

that are all necessary

to function like

a natural, healthy,

normal human being.

The creative ones,

who get sick,

run the risk of

losing their gift because

their ideas won’t stick.

But true creativity

never really dies.

It lives right behind that

place between your eyes—

the same place

where fear lies.

And when fear slips in front

of the creative mind

It’s easy to forget

yourself. We become blind.

 

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Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

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