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      Diagnosed With Diabetes… Now What?

      February 17, 2021February 17, 2021

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      5 Tips for Staying Safe With Chronic Illness…

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      April 16, 2021April 16, 2021

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      5 Tips for Staying Safe With Chronic Illness…

      March 31, 2021March 31, 2021

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Mighty Well

Chronic Illness

Rare Disease Day

by Ariela Paulsen February 28, 2021February 28, 2021
written by Ariela Paulsen
Rare Disease Day

Living with chronic illness is a challenge.  Living with a rare disease only adds to the challenges: locating providers who are knowledgeable and comfortable enough to treat you, explaining your situation to friends and family who’ve never heard of your illness, accessing treatments available in your area and price range, finding people with the same condition for support…

In honor of Rare Disease Day, we would like to give an extra shoutout to all of our Friends in the Fight who are living with rare (or rarely diagnosed) diseases!  We see you, and would love to welcome you in our Friends in the Fight group.

For more stories, check out 10 Celebrities Who Know What It’s Like to Face Rare Disease, or our previous spotlights on Wendy Williams, Robin Roberts, Travis Flores, Lady Red Couture, Jimi Olaghere, and Sia (who has both Graves’, a rare disease and EDS, a common, yet rarely diagnosed one).  

Want to learn more about rare diseases and how you can join the fight?  Check out the National Organization for Rare Disorders.

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Ariela Paulsen

Ari struggled with a wide array of health problems for decades before being diagnosed with EDS/POTS/MCAS/etc at age 25. She began writing as a way to heal while spreading information and helping others through their own journeys. She loves being part of the Mighty Well team, sharing the stories and strengths of spoonies everywhere!

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Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

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