Halsey Celebrates New Diagnoses
Singer-songwriter Halsey is all about realness. They have been open about struggles with endometriosis for years. When they had their first baby last July, they publicly spoke about prioritizing time with their son over time spent trying to get back into shape, and posted a gloriously honest video about what postpartum bodies can look and […]
Motherhood With Chronic Illness: 7 Things I Wish I’d Known Beforehand
This will be my first Mother’s Day as a mom, and I am bursting with thoughts and feelings. So much work, energy, healing, and luck went into making this possible. I have been open about my journey of motherhood with chronic illness – my fears of not being able to conceive, but also of getting pregnant and […]
POTS and ME Awareness: A Surprising COVID-19 Outcome
Throughout the COVID-19 pandemic, the prevalence of COVID-19 “long-haulers” has baffled doctors and researchers. Some patients, regardless of age or severity of COVID symptoms, never fully recover. They continue to have crushing fatigue, brain fog, shortness of breath, headaches, racing heart rate, and an inability to exercise, even to climb a few stairs. For some […]
Celebrating Our Diverse Brains: Claire Lapat
This week, we are learning about neurodiversity in our community. We sat down with Claire — athlete, college student, and aspiring doctor — to learn about her experience with head traumas and the lasting effects for her brain. Tell us a little about your journey I got my first concussion when I was 10 years […]
Celebrating Our Diverse Brains: Rebecca Wexler
This week, we are learning about neurodiversity in our community. We got to chat with Rebecca, a nurse, mother, and Friend in the Fight, about her experience as an adult with ADHD. Tell us a little about your journey! Open-ended questions like this are hard for me… As a kid I was energetic, loud, interested […]
My Illness Has Made Me Stronger
My name is Emily Pierri. I am 17 years old, and I have been chronically ill for 8 years. My diagnoses are Type One Diabetes, Endometriosis, ARD (Adhesion Related Disorder), POTS (Postural Orthostatic Tachycardia Syndrome), Gastroparesis and MCAS (Mast Cell Activation Syndrome). One of the hardest things about living with multiple chronic illnesses is the […]
A Fighter’s Journey: Living With a Rare Illness
I’ve pressed the delete button on my keyboard a million times by now… (why you ask) That’s what a writer aspires for. A statement left unanswered, and by the end to be resolved. As an avid writer, you wish to be interesting, unusual and unique. Things I wish not so much to be as a […]
Spoonie Stories: Advocating for People with Disabilities
Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.