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coronavirus

    Mighty Well | Mighty Well Mask | pregnant in a pandemic
    Chronic IllnessFeaturedFriends in the FightLyme DiseaseThe Undefeated

    Pregnant, Sick, and Quarantined

    by Ariela Paulsen May 19, 2021May 19, 2021
    written by Ariela Paulsen

    No matter who you are or where in the world you live, this year has been one of a kind.  I feel incredibly fortunate that not all of the changes I’ve experienced have been negative — I spent much of this year pregnant and feeling remarkably well (for me)!  If all goes well, I will end this pandemic with an incredible prize: a much longed for baby.

    the journey

    Some of you may know that the road to get here was not uncomplicated.  I have PCOS and as a result have never had normal cycles.  After my sister’s devastating years of infertility and treatments, I started tracking my temperature and other hormonal symptoms and found that I too rarely ovulated.  I also worried about my other diagnoses — even if I were to get pregnant, would childbirth be dangerous for me?  Would I have the energy necessary to be a good parent?  I remember breaking down into to tears at an EDS conference, wondering how I could possibly manage all of this well enough while also trying to have a job.  In the end, I left my part-time job and spent a year caring for myself.  During that year, I saw a million doctors, did hours of research, started an elimination diet and several medications, worked hard in physical therapy, and most importantly, I rested.  I listened to my body and took care of its needs.

    And it worked.  I had energy.  I could walk again.  I could shower without fear of passing out.  I could eat without causing a week-long reaction of migraines and GI disasters.  And remarkably, my hormones seemed to improve as well!  My cycles were by no means normal, but cysts became less frequent and ovulation began to happen more often than not.  Interestingly, I also learned that many of my symptoms — especially joint laxity and neck instability — could be predicted by tracking my hormones.

    pregnant!

    And so it was that I came to this wacky year, healthier than I’d been in decades, and ready to take the leap into motherhood.  I feel so lucky to say that it only took a few months to get pregnant.  Other than some extremely painful cysts at the start of pregnancy (which required testing every few days to make sure it wasn’t an ectopic pregnancy), these last eight months have been blissfully normal.

    I puke a lot, even in third trimester.  I have dizzy spells and am even clumsier than my usual clumsy self.  I have occasional headaches and bouts of erratic emotions.  My joints feel floppy and my back is sore.  But for the first time in my life, my symptoms are normal.  It’s been such a joy to read about what to expect from my body and see my experience perfectly described!  No more baffled doctors or unexplainable symptoms.  No more fear of what the symptoms might mean.  It’s so much easier to accept and move on when I know that the pain and nausea and every other sensation is simply my body acting as it should.

    pregnant in a pandemic

    It goes without saying that being pregnant this year has been pretty strange.  No one sees my belly grow, since video calls only show my shoulders and face.  I realized in a meeting the other day that no one knew I was pregnant — I had been working with this team every week, but it never came up in conversation and no one noticed any changes!  Sharing with people I “see” so often that I was in my third trimester of pregnancy without their knowledge produced quite a reaction.  I do feel sad sometimes that people I love can’t visit, can’t see my bump in person or feel my baby kicking.  It is also scary to have to go into a hospital for appointments or interact with people whose masks are dangling below their noses.  I’m too Zoom-fatigued to have an online baby shower, but a large in-person gathering feels daunting.  

    While not marking pregnancy milestones in the way I’d envisioned is tough, there have been some significant perks.  Because I am teaching remotely this year, my morning sickness was actually less disruptive.  I could simply turn off my video for a moment while students were busy, to run to the bathroom, or to lay down and nibble crackers to stave off a bout of nausea.  I can’t imagine the daily nausea in my stuffy classroom, having to vomit in the tiny bathroom shared between staff and students.  Being in my own space has been a blessing, no matter how challenging remote teaching can be.  And the slower pace of life, the lack of pressure to go out and socialize, has allowed me to continue resting and listening to my body.

    sick in a pandemic

    Pregnancy aside for a moment, being chronically ill during a pandemic has been a fascinating experience.  My immune system’s complicated status leaves me feeling both underprotected and terrified of an over-response, should I get COVID.  Many patients with my conditions experience a permanent increase in symptoms after a bad virus or other infection.  My own condition worsened significantly after a mild (and immediately treated) bout of Lyme disease when I was 11.  I have a constant fear looming over my head, that all of the work I’ve done to become healthier would be undone if I got COVID.  I picture myself unable to get out of bed, requiring reclining wheelchairs and feeding tubes, unable to care for my wiggly fetus.  It’s terrifying.  

    So, I’ve completely isolated myself.  I moved in with my parents to save money (and for extra support should my pregnancy or birth become complicated by my illnesses) and advocated my way into working fully remotely.  I have spent more than a year in these three rooms, going out only for doctors’ appointments and outdoor walks with friends.  When I do go out, I proudly brand myself as immunocompromised and make sure everyone around me is masked and distanced, despite these standards making me feeling judged or high maintenance.

    The interesting thing about being a spoonie in a pandemic, though, is that while it can be extra isolating because we can’t take the risks that others may think are reasonable, we are champs at being isolated.  I have spent long periods of time unable to muster the energy to go out or see friends.  I have mastered the art of finding ways to fight boredom when confined to a single room (or bed).  I have had to fight through fear of judgement to advocate my needs — although it can still feel triggery and painful, I am very practiced at it.

    So when I hear the rest of the world struggling under the conditions of quarantine, I wonder if they could learn a few things from the chronic illness and disability communities.  It has been comforting, if only for a little while, to know that others around us can empathize with being afraid for your health and safety, with not being able to go out when you want, with feeling alone even when loved.  I hope some of that empathy can last.  When vaccines have all been administered and everyone goes back out to their jobs and restaurants and beaches, I hope they’ll remember what it felt like, and give a little extra kindness to those of us who are still experiencing isolation.

    Do you have a story to share with our chronic illness community? Join the Friends in the Fight facebook group!

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  • How We’ve Helped — and How You Can Too!

    by Ariela Paulsen May 12, 2021May 12, 2021

    This past year has driven home a familiar truth, that we are all in this together.  Mighty Well’s mission has…

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  • 5 Reasons We’re Set Up for Success in the Final Months of COVID

    by Ariela Paulsen April 28, 2021April 28, 2021

    We’re in the home stretch.  COVID-19 infection rates in the US are still hovering just under 60,000 each day, about…

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  • 3 Ways to Celebrate Spring

    by Ariela Paulsen April 21, 2021April 21, 2021

    It’s official — spring has sprung!  Birds have returned to sing each morning, flowers are blooming, trees are budding, and…

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  • Get Ready to Get Vaccinated

    by Ariela Paulsen April 16, 2021April 16, 2021

    Friends, it has finally happened — I got my second COVID-19 vaccine today!  It was not easy getting here.  Being…

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  • How (and Why) to Effectively Apologize

    by Ariela Paulsen April 7, 2021March 24, 2022

    After a year of restrictions, quarantine, and everything virtual, life returning to “normal” seems to be drawing closer.  While this…

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  • 5 Tips for Staying Safe With Chronic Illness as the World Opens Up

    by Ariela Paulsen March 31, 2021March 31, 2021

    Spring is here, vaccines are flowing, and states are loosening restrictions.  For those of us with chronic illnesses or compromised…

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  • Chronic Illness Guide to Getting Organized for Confidence and Safety

    by Ariela Paulsen March 24, 2021February 23, 2022

    The world seems to be holding its breath, preparing to get back to life.  For those of us with chronic…

    1 FacebookTwitterPinterestEmail
  • Four tips for living it up after vaccination

    by Ariela Paulsen March 17, 2021March 17, 2021

    We’re getting there!   After months of the highest COVID-19 surge yet, cases are finally falling, largely thanks to vaccination.  In…

    1 FacebookTwitterPinterestEmail
  • Vaccine Complications With Chronic Illness

    by Ariela Paulsen March 10, 2021March 31, 2021

    The COVID-19 vaccine is finally here, and ramping up quickly.  More than two million doses are being administered daily, expected…

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Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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    7 Things Not To Do With a PICC Line

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    Making a Choice: PICC Line vs. Port

    July 20, 2017
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CHRONIC ILLNESS

Our Story

Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

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    June 30, 2022
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    June 22, 2022
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    June 16, 2022

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mightywell_

One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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