How the First Tube-Fed Model to walk NYFW Turned Sickness into Strength
We all have heard of the iconic fashion event, the New York Fashion Week. Held twice a year, models, designers, hair and make-up artists, and photographers flock to the Big Apple to showcase their talents. This overflow of art and talent is such a spectacle to watch. So many spend their life dreaming of even […]
Top Favorite Finds From Oley 2017 Conference
At this year’s Oley Conference, the Mighty Well team had the opportunity to connect with potential partners, who share a socially conscious mission to not only improve the patient’s lifestyle, but also to aid caregivers in giving the most supportive care possible– similar to our mission of showing appreciation for caregivers, and “friends in the fight!” YOU’RE […]
How I Learned To Love My Feeding Tube
My name is Gracie Gardner, I’m 16 years old and living with Idiopathic Gastroparesis. Living with this disorder is definitely not easy to cope with. I’ve had a PICC line along with countless NJ tubes (Nasojejunal feeding tube) and several NG tubes (nasogastric tube). One of the most challenging aspects of having life-sustaining tubes stuck to […]
My Search for a Diagnosis – and for the Support of the Doctors
Over the course of the last five months, as a mere teenager, I’ve been diagnosed with a number of new chronic illnesses: Dysautonomia (POTS), Chronic Fatigue Syndrome and Gastroparesis.
7 Things People With Feeding Tubes Wish Others Knew
A feeding tube isn’t a tool of convenience nor is it a sure sign that someone is terminally ill. A child doesn’t get a feeding tube because he or she is a picky eater, either; there are many underlying factors. These are just a few common misconceptions people have when they see someone with a […]
A Stronger More Confident Me
“My diagnosis date I remember not as the day my life became sealed with an expectation date, but as the day I truly started living. Since stepping down from my career I have become a support group leader, patient advocate, public speaker, and illness blogger. These new ventures have opened incredible doors in my life […]
Advice From a Friend Living with Gastroparesis & Feeding Tubes
My name is Shannon, I’m 22, and I’ve suffered from a chronic illness my whole life. I have Gastroparesis, which causes the muscles and nerves in the stomach to not function properly, causing my stomach to not empty properly. I also have dysmotility of the small intestine causing even further GI problems. Over the years, […]