A Fighter’s Journey: Living With a Rare Illness
I’ve pressed the delete button on my keyboard a million times by now… (why you ask) That’s what a writer aspires for. A statement left unanswered, and by the end to be resolved. As an avid writer, you wish to be interesting, unusual and unique. Things I wish not so much to be as a […]
The Art of Storytelling in Chronic Illness
Dana was diagnosed with myelodysplastic syndrome at the age of 18. She was a young, artistic, field hockey player that was just hit with a hard diagnosis. She attended a talk with a cancer survivor when her family member connected her with Dr. Angela Cooke-Jackson. Dr. A thought it would be helpful and fulfilling if Dana shared […]
5 Reasons to Be Grateful For Your Chronic Illness
Chronic illness is definitely tough most days… However, it can also make you very grateful for what you do have. Since we have to live with it either way, we might as well make the best of it! Personally, having Lyme Disease and living with a PICC line has given me these 5 reasons to be grateful for […]
8 Simple Ways To Eat Healthy On a Budget
Chronic illnesses are difficult to manage, because once there, you will have to live with it forever. To ease out your burden, modifying your food intake is key, so it’s important that you look at the choices you need to make when filling out your plate. Do not believe others when they say that switching […]
How To Best Keep Track of Your Medications
Right before my sophomore year of college, I went from being a carefree college student to someone who had to manage anywhere between 15 and 52 pills, supplements, and intravenous medications to push through a PICC line (Peripherally Inserted Central Catheter). This was right after I was diagnosed with Chronic Neurological Lyme disease and co-infections. […]
The Journey of a Young Man With Selective Mutism
Everyone has fears. A fear of the dark, a fear of heights, or even a fear of the unknown can make leading an otherwise normal life difficult. But what if you were afraid not of the dark or of heights—but of other people? What if you were overcome with paralyzing terror and even pushed to […]
Blankets & Hugs for Kids
My name is McKenna, I am 14 years old. I have battled chronic illnesses since the age of 8. I have Fibromyalgia, Hashimoto’s, PCOS, VCD , Chronic Migraines, MTHFR Gene, Hypertension and high heart rate, Asthma, a benign tumor on my liver, & other undiagnosed things. After going through/still going through many tests, procedures, ER […]
Spoonie Stories: Coming to Terms With Your Disability
February 22, 2015 | Lian Najami: Haifa, Israel It all started eight years ago; I was running on the track when I was no longer able to lift my knees high enough. I couldn’t understand what was wrong with me, what had happened to my body, or why, all of the sudden, I started losing my […]