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Chronic IllnessFriends in the Fight

Meet the Mighty Well Ambassadors: Womens Health Advocates

by Allie Cashel October 7, 2019October 9, 2019
written by Allie Cashel
Meet the Mighty Well Ambassadors: Womens Health Advocates

Did you know women are statistically more likely to be diagnosed with multiple chronic illnesses than men? Many of the diagnoses represented in the Mighty Well community are disproportionately experienced by women — including lupus, endometriosis, fibromyalgia, and chronic fatigue syndrome.

Yet despite these high numbers of women experiencing chronic health setbacks, research shows that they are routinely dismissed for their symptoms and pain. The dismissive nature of our medical system creates issues with self-confidence, increased feelings of isolation, and a need for trust and community.

Thankfully, our Mighty Well Brand Ambassadors are up for the task of fighting isolation and building community! This month, we introduce you to three of our new Ambassadors all of whom intimately understand the experiences of women living with chronic illness and use their voices to support others and provide a much needed sense of community.

Brianna Renée

Brianna lives with multiple chronic illnesses, including Ehlers Danlos Syndrom, Dysautonomia POTS, Dyphasgia, CFS , and others. She knows firsthand the way many people living with these kinds of conditions, particularly young women, face dismissal for their symptoms.

Too long Doctors have placed us in the stress anxiety spectrum and will not do their job and look for other issues until something drastic happens. If feel like you are in a category all of your own; know you are not alone!

She encourages all of us to speak up and fight for diagnosis and treatment, and wants us all to know we are not alone along the way.

Marina Mooney

Marina is a wonderful example of a young woman who is a true self-advocate. She was misdiagnosed with a progressive neurological disease
called the Reflex Sympathetic Dystrophy and almost died. Through her own research and advocacy, she discovered she had Lyme and multiple tick-borne co-infections and had gone undiagnosed or misdiagnosed for 18 years. By speaking up and never giving up, she self-advocated towards her own recovery.

Never give up! I diagnosed myself through rigorous research
after I received a masters degree and took it to the proper specialist to have it confirmed and begin treatment. Stay hopeful but also allow yourself to cry when you need to and reach out for support around you. The chronic illness community is so wonderful!

Marina is a leading voice for women in the chronic illness community, making sure we all have a Friend in the Fight when we need it.

Melody Olander

Melody has taken her experience with chronic illness and turned it into her career. She just graduated with her Master’s degree in Healthcare Solutions with a focus on Integrated Healthcare! After fighting for a diagnosis and through multiple hospitalizations, Melody was ultimately diagnosed with Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) along with EDS, POTS, Polyneuropathy, Autonomic Dysfunction, and other various smaller conditions. Her experience with the healthcare system is what inspired her to go to school to take care of others and to make fix to the flaws and failures she experienced in her quest for a diagnosis, flaws that many women (especially young women) experience every day.

She also works hard to make sure everyone knows that they should trust their own bodies, and take care of themselves when they need it.

Don’t let anyone tell you how you feel. I used to feel discouraged when doctors would tell me that nothing was wrong even though I felt something was wrong. I used to feel discouraged when my friends would tell me I can do something, and I just didn’t want to. But now I know to listen to my body, it’s so important to always listen to your body.

Do you want to join the Mighty Well Ambassador Community?

There are so many amazing young women who have recently signed on to the be a Mighty Well Ambassador, using their voice to inspire strength in people around the world. Join us! Sign up to become an ambassador at this link today!

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Allie Cashel

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
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Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
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Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
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We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
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Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
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You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
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We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
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The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
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Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
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