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Relationships and Support

    Mighty Well | PICCPerfect PICC Line Cover
    Chronic IllnessFriends in the FightRelationships and Support

    5 Reasons Why I Love My Sick Friends

    by Ariela Paulsen March 24, 2022March 24, 2022
    written by Ariela Paulsen

    Being sick is hard.  There are many times when I look at my life, at all the joys I’ve had to forgo and the thankless work I put in to simply make it through the day, and I wish I could change it all.  I wish I could have energy, that I could eat whatever foods I want and socialize without crashing.  The list of wishes and grief feels endless in those weeks when I’ve been slogging through a flare with no end in sight.  

    But when I’m in an upswing, there are times when I actually wouldn’t change it.  I am who I am because of illness.  I am proud of my disabilities and the creativity I’ve built by having to work with them.  Years of pain gave me a deep pool of empathy. Perhaps the greatest side effect of illness is the people I’ve met.

    Sick friends have been an incredible support network for me and have become some of my best friends  They get me on so many levels.  They have empathy to match mine but have had to learn boundaries out of self-preservation.  They are some of the best communicators I’ve met, whether by necessity or as a by-product of the therapy prescribed by doctors.  And the communities of sick and disabled folks I’ve found myself in have been loving, warm, and supportive.  

    In recognition of these incredible spoonies, I’d like to share with you the top 5 reasons why I love my sick friends with the hope that this can help you find a support network of your own:

    1. connection

    I always had trouble making friends.  I don’t know whether it was feeling different than my peers or the shame I carried from my symptoms being deemed “disgusting” by those who discovered them.  Maybe it was just my extreme introversion.  Whatever the reason, that feeling of true connection often evaded me.  I revel in my sick friends today who seem to just get me.  They know so much of my experience without me having to explain.  I share a story and see their heads nod in understanding.  My sick friends have all felt isolated at some point, so they are eager to make connections and are expressive with their appreciation for my friendship.

    2. honest communication 

    Another reason I connect so much easier with sick friends is that I can communicate more honestly with them.  You know that feeling when someone asks “how are you?” and your brain is screaming “honestly, not so good!” but what comes out of your mouth is “good! You?”  Few moments make me feel more isolated than when I feel terrible but tell someone I’m fine.  I love sick friends who just cut to the chase and say it how it really is.  Not that they dump heavy stuff on me without warning (I’ve discussed the importance of finding the right space for sharing the heavy stuff here), but they are often more honest from moment to moment.  One friend’s response when asked “how are you?” tends to be “everything is terrible and I’m dying.  How are you today?”  We laugh and acknowledge that yes, things are really tough.  We can then choose whether to dig into why it’s tough or just move on with our day.

    3. empathy

    Any struggle in life creates space in your brain to understand the struggles of others.  I often find that sick friends are oozing with empathy.  They know pain, fear, isolation, stigmatization, discrimination.  They can see it in others and the world around them.   As a result, they are kind and caring.  They stand up for others (when energy permits) and are able to reach beyond the differences that too often divide us.

    4. problem-solvers

    If practice makes perfect, then facing daily barriers makes extremely proficient problem solvers.  Being chronically ill can cause problems as minor as finding crackers in the grocery aisle with no added chemicals to getting the care you need when semi-conscious, alone, and in the care of an ER team who’s never heard of your diagnoses.  While we’d rather not have to face these challenges, it can lead to some incredible resourcefulness and critical thinking skills.  When something goes wrong with my house, my job, my relationships… I call on my sick friends to help me think it through.  We don’t easily throw up our hands and decide it can’t be fixed because, so often in our experience, that simply isn’t an option.  

    5. access intimacy

    I came across the term access intimacy recently and it’s my absolute favorite. Coined by disability advocate Mia Mingus, it means the intimate feeling of knowing your accessibility needs will be met by someone.  Maybe they intuitively anticipate what you need before you even ask, or they simply create an environment so accepting and accessible that you feel no discomfort in asking.  As someone with invisible disabilities, speaking up for what I need carries a lifetime of shame, fear of being judged or rejected, and feeling guilty for being a “burden” to others.  With sick friends, I can just say whatever I’m feeling or needing.  They validate that my experience is real and empathize that they’ve been there.  They ask clarifying questions to make sure they understand my needs and then put their creative and resourceful brains to the task.  And sure, sometimes in a group of chronically fatigued and disabled people, sharing what I need doesn’t mean anyone else can get it for me.  But having the space to ask is revolutionary in itself.

    For more tips on supporting sick/disabled loved ones, check out the relationships section of our blog here!

    While I may not feel grateful for being sick, I have immense gratitude that my illness journey led me to such wonderful people.  It took me years to find them, but it was worth the wait.  If you are sick and reading this, I wish for you to find a community of loving sick and disabled friends.  If you are a healthy and abled ally, I hope you will appreciate these gifts that sick friends can bring to your relationships ♡

    Looking for your own community of the illest people and their allies?  Join our Friends in the Fight facebook group!

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  • Compassion Fatigue

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    This morning, my breakfast was interrupted by a family member looking to vent to me about something that had kept…

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  • 4 Ways to Find Connection From a Distance

    by Ariela Paulsen December 8, 2021March 24, 2022

    Snow has begun to carpet the world outside my home in northern Vermont, and I find myself taking slow, grounding…

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  • 5 Tips for Building Your Care Team

    by Ariela Paulsen October 20, 2021April 25, 2022

    Learning to thrive with a chronic illness is a team effort. It’s not something you can simply do through your…

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  • 6 Tips for Talking to Family and Friends about Your Chronic Condition

    by Sarah Joy July 9, 2021March 24, 2022

    If you have a chronic condition, you know how quickly a flare-up can seem to take control of everything in…

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  • Informed consent in the time of COVID

    by Ariela Paulsen June 16, 2021March 24, 2022

    I often find myself returning to the topic of consent.  It is so crucial to so many aspects of life,…

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  • 5 Things About COVID Anxiety That Patients Wish Friends, Family, and Colleagues Understood

    by Ariela Paulsen May 26, 2021March 24, 2022

    COVID-19 cases in the US have plummeted since the vaccine rollout in January.  The millions of vaccines still being given…

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  • How (and Why) to Effectively Apologize

    by Ariela Paulsen April 7, 2021March 24, 2022

    After a year of restrictions, quarantine, and everything virtual, life returning to “normal” seems to be drawing closer.  While this…

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  • 3 Ways to Recognize When Someone Needs Support

    by Ariela Paulsen December 1, 2020March 24, 2022

    How do you know when someone needs support?  Ideally, they would feel comfortable coming to you and directly asking for…

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  • 5 Ways to Give Support to Someone You Love

    by Ari Paulsen November 23, 2020March 24, 2022

    This holiday season, we all need a little extra love and care.  The type of support needed, however, will differ…

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The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
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Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
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Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
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We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
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You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
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We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
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The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
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I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
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It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • 3 Tactics For Managing Anxiety Attacks

    May 19, 2022
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    May 13, 2022
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    May 5, 2022

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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