Millions Missing: making activism accessible
A few years ago, when I was just beginning my plunge into the world of diagnoses and drastic life changes, I saw the documentary Unrest by Jennifer Brea. Not only did the representation on screen feel incredible, but it moved me to action. I felt so empowered by this woman who could create so much […]
Mother’s Day Reflections — a different perspective
As we gear up for Mother’s Day festivities and gifts, I notice a familiar mix of emotions: love, gratitude, excitement… but also grief, fear, and pain. So, I will share with you the reminder I have shared with myself every Mother’s Day for years: Celebrate Mother’s Day, find joy and shower love on the mothers […]
Three Cystic Fibrosis Activists That Travis Flores Thinks You Should Know
As you may know, May is Cystic Fibrosis Awareness month. Cystic fibrosis (CF) is a progressive genetic disease. It causes lung infections, as well as affecting the pancreas and other organs. It makes breathing difficult and can require intensive treatment including lung transplants. Especially right now, when people with underlying respiratory conditions feel particularly vulnerable, […]
Mighty Replay: Jesse Ruben virtual concert
Representation matters. It’s a core reason why Mighty Well was created in the first place — so that products for patients would be designed, tested, and modeled by patients. It’s why we love to share our picks for books, movies, and TV shows featuring spoonies. And it’s also why Jesse Ruben’s virtual concert yesterday had […]
Meet Isabelle Edwards: Type 2 Diabetes & Gastroparesis Warrior
Isabelle Edwards is known across the internet as the Diabetes Diva, and if you ever have the privilege of meeting her, you will quickly understand why. Isabelle lives with type 2 diabetes, and her enthusiasm for life, her kindness, and her glamour are what you remember after spending time with her. She is a fierce advocate […]
Reaching Out to Immunocompromised Loved Ones: The Questions We Want to Hear
Right now, we all have someone we feel worried about. At least one person in our lives is at higher risk from COVID-19. Yet worrying doesn’t necessarily lead to reaching out. We may feel awkward or unsure of how to ask our immunocompromised loved ones how things are going. Being raised in a society that teaches us to […]
10 Tips for Time at Home
The world has shut down in a way that is unprecedented until now. With so many people stuck at home, questions around how to fight boredom are popping up. For those of us with chronic illness, this is not a new problem! We are, in fact, the leading experts on the subject! So, if you […]
The Silence of Shame
Each month, I scroll through the health awareness campaigns. This month, I noticed a theme — almost all of these conditions involve stigma. While it is always important to shout out each illness and bring awareness and funds to research that we may not have heard of, it is extra important to bring light to […]
Finding Solace in the Outdoors: Interview with Chloe from More than Lyme
Mental health experts are urging us to get outdoors during this pandemic. As with everything else the virus has brought, this recommendation can be complicated for the chronic illness community. I believe that it’s so important for our mental health to get out into nature! Yet going outside really can feel daunting for a number […]
Chronic Illness Accommodations At Work
A fascinating thought has started to percolate in my brain. From the early days of COVID-19, more and more people are starting to understand how it feels to not feel safe at work; having to make the choice whether to risk their own health, or risk disapproval or loss of income from employers. Social media […]
What I Wish People Understood About Multiple Sclerosis
In honor of Multiple Sclerosis Awareness Month, we chatted with Jenna Green, a multiple sclerosis warrior, and Mighty Well® brand ambassador. Jenna is a small business owner, blogger, and passionate multiple sclerosis advocate. She had a lot of great insights about MS that others would greatly benefit from knowing if they have a loved one […]
Conversations with Alyssa Carfi: Founder of Brave Minds Project
Last week, Mighty Well CEO Emily Levy sat down with Alyssa Carfi, founder of Brave Minds Project, for another conversation in our Friends in the Fight Interview series. Alyssa decided to create Brave Minds Project as she was preparing to celebrate a very big milestone: the 10 year anniversary of her brainstem surgery. Her organization […]