Living Mighty Well

How to Ace College (and Have Fun) Despite Having Chronic Condition

Now that school has started, what’s your biggest fear? If you’ve been recently diagnosed with a chronic condition, your excitement might be replaced with fear. Fear that you might fail. Fear that you won’t have the strength to accomplish everything you’ve set out to do. Anxiety and fear are normal. But it doesn’t have to take over your college life. Take it from me. I’ve been there....
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My experience at medcomp

Recently, I was fortunate enough to be able to speak to the employees of MedComp and MarTech in Harleysville, PA, about understanding the patient perspective of long term vascular access and management (yes, this is a topic I geek out over!) I believe it is important for the manufacturers and distributors of medical device companies to understand the perspective of the patients they work with. ...
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Tips For Living The Port Life

 Hey, there! My name is Aubrey Winkle and I am a senior at UT in Austin. I have Lyme Disease and postural orthostatic tachycardia syndrome (POTS) and as a result, have a Port for my treatments. I do 4 hours of IV infusions every day through my Port. I have had my port for about 8 months now and it has become such a part of my life I barely even notice it anymore. I know it may seem like a big ...
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No More Pricks, Now I've Got My PICC

PICC LINES--A BLESSING AND A CURSE. I've had a PICC line for a little over a year now, as my veins were not coping with all the frequent infusions. My first PICC line clotted after 9 months, so I'm on my second now. As annoying as it can be to have a tube hanging from your arm, you should always remember the good it's done for you and how it is helping you now!...
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Putting Your Best Foot Forward

Hey, there! My name is Sarah Tsacogianis, and I’m from a suburb just outside of Boston, MA. I am 23 years old and have been diagnosed with chronic illness for 5 years now.   It all began at age 18, when I found myself in and out of doctor’s offices, constantly being told “it’s all in your head,” or “maybe if you lose weight, you’ll feel better.”  That’s when I realized I needed to take matters ...
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Dating With An Ostomy

My name is Liesl (LEE-sel), and I am a 23 year old in central Illinois living with a chronic illness. When I was 17, I got sick with what we all thought was the flu, but after multiple tests and failing medications during a 37-night hospital stay, my illness turned out to be ulcerative colitis. Six weeks after my diagnosis, I decided to have my large intestine completely removed. After nearly 7 ...
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6 Tips for Soaking up the Sun with a PICC Line

As someone hailing from the Ocean State, I was totally devastated this summer when I realized I wouldn’t be able to splash in the waves at Narragansett Beach, where I grew up. Growing up, most of my friends were at summer camp, so my dad would drop me off with two dollars, a cheese sandwich, my boogie board, and said, “see you at 5 o'clock!”...
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Lessons Learned on the Road to Acceptance

My name is Emmy, and I’m an 18 year old battling Systemic Arthritis, along with other autoimmune diseases, Mast Cell Disease, and more. Back in 2014, I went from being a healthy kid, about to start her freshman year at a new high school, to a girl I no longer recognized. The road to finding out the cause of my illness has been long and grueling. Even years later, I still have more questions than ...
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