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    Mighty Well | Mighty Well Mask | Immunocompromised Full Zip Hoodie
    Chronic IllnessMightier TogetherRelationships and Support

    5 Things About COVID Anxiety That Patients Wish Friends, Family, and Colleagues Understood

    by Ariela Paulsen May 26, 2021March 24, 2022
    written by Ariela Paulsen

    COVID-19 cases in the US have plummeted since the vaccine rollout in January.  The millions of vaccines still being given each day are working tremendously — preventing infection at remarkable rates, as well as minimizing severe illness and death in those who do experience breakthrough infections.  Added to this is the warmer weather calling us outdoors.  Since outdoor transmission accounts for less than 1% of cases, the spring and summer weather will only help to control the virus.  The CDC has changed its guidelines dramatically to reflect these successes.  With the world opening up, spring in the air, and very real protection in our arms, for many, optimism is infectious! 

    Why, then, are some people continuing to stay isolated?  Why hasn’t everyone shed their outdoor masks and embraced the new guidelines?  The reasons can be varied and extremely complicated.  If you know someone who seems to be more cautious than you, a history of illness or disability may be at the heart of their fear.  We hope you’ll take a minute to understand why those of us with chronic illness still feel vulnerable:

    1. pre-existing conditions and compromised immune systems

    First and foremost, we may have a higher risk of contracting COVID, thanks to immune deficiencies or immune-suppressing treatments.  You may have heard the term “viral load” — how much virus exposure would be needed for you to get infected.  If your immune system doesn’t fight the way it should, a smaller viral load might still be dangerous.  For example, it seems that vaccinated folks who do get infected may not give off enough germs to infect anyone else… with a healthy immune system, that is.  

    If we were to get infected, people with a history of illness may be more prone to severe symptoms, death, or an exacerbation of our pre-existing conditions.  The stakes, simply, are much higher.  The difference in fun between going to a restaurant vs. having a socially distanced outdoor picnic with takeout may not outweigh the difference in risk.

    2. guidelines not created for us

    CDC and state guidelines are created for harm reduction — giving enough space for people to live their lives and feel hope, while also advising against the most harmful or risky behaviors.  They also have to keep an eye on the economy, kids’ education, our collective mental health… it’s a lot to juggle.  So, when looking at the data, scientists and policy makers weigh all of the costs and benefits to find the path forward that causes least harm to most people.  Anyone who has spent their life with illness or disability, however, knows that what is true for “most people” is often not applicable to their own lives.  When reading these guidelines, we may feel that they are reasonable for our friends and neighbors, but not necessarily for our unique (and often overlooked) circumstances.  

    Many of these guidelines, as well, are written specifically for healthy, fully vaccinated people.  If you continue reading the reports, there are additional guidelines for high risk or immunocompromised individuals.  So before you raise your eyebrows at someone’s choices, remember they may in fact be following recommendations from the CDC or their doctors.

    3. vaccines

    The new guidelines are largely the result of how successful vaccines seem to be at reducing illness, death, and transmission.  Many people now feel comfortable loosening their personal boundaries because they have reached full vaccination status.  For chronic illness warriors, this may not be an option.  Some people are not able to get the vaccine at all due to illness.  Others can get the vaccine but may not be able to mount a full antibody response to it due to immune disorders or immune-suppressing medications.  

    Not only does this add to increased risk of getting COVID, it also makes reading CDC guidelines and determining personal boundaries more complicated.  Scientists are working on more nuanced antibody tests to determine how strong an immune response to the vaccine was.  But until it is developed in the next several months, we (and our doctors) have to guess whether we fall into the “vaccinated” or “unvaccinated” category.

    4. the emotional toll of illness

    Yes, our physical safety may be impacted disproportionately by COVID.  But our emotional safety is also at high risk.  Psychologists have analyzed the many ways in which this pandemic has affected our mental health.  While it is affecting almost everyone in some way, people with a history of trauma are impacted most.  The fear we all felt last summer and fall — not knowing who to let in or if we were safe in our daily life — left a toll.  Anyone who had experienced those same fears before this year would feel the same anxiety plus triggers to past traumas.

    An unfortunate side-effect of life with significant illness is emotional trauma.  So already, people in our community are primed for additional COVID anxiety.  The fact that our trauma is directly related to fearing for our health compounds this problem.  For the icing on top, many chronic illnesses are triggered by an initial virus or bacterium.  We may have begun our journey because of getting sick from something like Lyme or mono.  When we hear stories about COVID long-haulers, we know what it’s like.  We are terrified that even a mild case of this virus could leave us permanently (more) disabled.  When you’ve already spent years fighting for a normal life, this hits hard.  

    COVID fears find our most sensitive nerves.  We are extra vulnerable, primed for anxiety.  One particularly effective coping strategy for this anxiety is controlling our environment to minimize risk.  Now that the risks are decreasing, our anxiety may not have yet dissipated.  Can you blame us for still holding onto the safety ropes that provided such stability for the past year?

    5. let us choose our pace

    When advocating for ourselves, we often feel the need to prove that we’re being “rational.”  But you know what?  The truth is, the irrational and traumatized aspects of our mind are also real and justified.  Some fear is simply an emotional response to trauma.  A gathering that, by all rational accounts, seems to be safe might not feel safe yet.  Wearing a mask while outdoors and distanced might not be medically necessary, but could provide a sense of comfort.  Some days, an activity that felt safe last week may suddenly feel scary because we were triggered by something that morning.  All of this is ok.

    The reality is that pushing someone to change their boundaries before they are ready will only exacerbate the problem.  Letting someone know you respect their decisions, and giving them space to act in ways that feel safe, will let them heal.  If you find yourself thinking “but they’re just being so anxious!” — take a breath.  Remember that they may have very real reasons to have different boundaries than you.  And if their decisions are being tainted by anxiety?  Have empathy for that as well.  Anxiety is challenging, and it is not anyone’s fault.  The best thing you can do is be supportive of their process and understanding of their differences.

    We have come a long way through this pandemic, and the end is in sight!  But what this final stretch looks like — and how long it takes — is different for everyone.  Let’s approach the exit ramp with kindness and empathy.

    Looking for more tips on how to navigate the rest of this pandemic?  Sign up for our newsletter!

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  • Pregnant, Sick, and Quarantined

    by Ariela Paulsen May 19, 2021May 19, 2021

    No matter who you are or where in the world you live, this year has been one of a kind. …

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  • 5 Reasons We’re Set Up for Success in the Final Months of COVID

    by Ariela Paulsen April 28, 2021April 28, 2021

    We’re in the home stretch.  COVID-19 infection rates in the US are still hovering just under 60,000 each day, about…

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  • 5 Tips for Staying Safe With Chronic Illness as the World Opens Up

    by Ariela Paulsen March 31, 2021March 31, 2021

    Spring is here, vaccines are flowing, and states are loosening restrictions.  For those of us with chronic illnesses or compromised…

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  • Making the Invisible Visible

    by Ariela Paulsen December 16, 2020December 16, 2020

    The best part of working at a small patient-owned business is getting to create the products that we wish we’d…

    0 FacebookTwitterPinterestEmail

About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

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  • Top 3 Digital Medication Organizers
  • 7 Things I Wish I’d Known About Motherhood With Chronic Illness
  • Self Care Case: What do you carry?
  • 5 Tips for Navigating Chronic Illness With Executive Function Challenges

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  • Ariela Paulsen on 3 Tips for Coping With Cognitive Dysfunction
  • Lindy B. on 3 Tips for Coping With Cognitive Dysfunction
  • Ariela Paulsen on 5 Things About COVID Anxiety That Patients Wish Friends, Family, and Colleagues Understood
  • A Glenn JOHNSON on 5 Things About COVID Anxiety That Patients Wish Friends, Family, and Colleagues Understood
  • Ariela Paulsen on It’s Here: The Chronic Illness Revolution

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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
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 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • 3 Tactics For Managing Anxiety Attacks

    May 19, 2022
  • Top 3 Digital Medication Organizers

    May 13, 2022
  • 7 Things I Wish I’d Known About Motherhood With Chronic Illness

    May 5, 2022

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mightywell_

One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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