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Treatment and Care

    Feeding Tube Complications — and how to avoid them
    Chronic IllnessMedical DevicesTreatment and Care

    Feeding Tube Complications — and how to avoid them

    by Ariela Paulsen December 29, 2021April 25, 2022
    written by Ariela Paulsen

    Feeding tubes can be a lifesaver – literally.  They enable our bodies to absorb the nutrients we need to heal. While tubes are wonderful interventions, they can also come with a risk of complications.  So if you are going down the enteral nutrition road, here are a few complications to look out for and tips for avoiding them:

    stool changes

    When you first begin tube feeds, you may experience constipation or diarrhea.  This is simply your body’s response to a new type of food.  As your bowels adjust, this will likely clear up on its own.  It can, however, be exacerbated by the type or pace of feeds or by new medications.  Be sure to mention any significant stool changes to your care team so that they can follow up if it persists longer, or becomes more extreme, than normal.

    skin irritation

    Wherever your tube touches your skin, irritation can occur.  This can be from reactions to adhesives or other products used on the skin, from leakage, or simply from frequent rubbing and friction of the tube.  Your skin may look red or rashy and may feel itchy, painful, or raw.  To reduce irritation, it helps to first determine the cause.  If movement/friction is the issue, secure the tube so that it doesn’t rub the skin.  If leakage is an issue, try split sponges or tubie pads.  And if your adhesives and other products are causing a reaction, try a new brand.  You may be amazed at how different the ingredients in each product can feel.  Always make sure to keep the area clean and dry, and do not apply creams or other products to the area without checking with your care team first.

    obstruction

    Sometimes tubes can get obstructed, or blocked.  This is obviously problematic, as it means you can’t get nutrition, hydration, or medications through.  Obstruction can be avoided by flushing with 30-60 mL of water after administering any feeds or medications, and flushing 10mL in between each medication.  For continuous feeds, it is recommended to flush every four to six hours.  Administering medications in pill form can also cause obstruction, so if at all possible, use liquid or powder medications only.  If unavailable, be sure to crush your pills thoroughly to avoid chunks getting stuck.  If you do get a clogged tube, your doctor may try to flush out the clog (if minor), repair the tube if possible, or replace it entirely if necessary.

    More tips here.

    dislodgement

    Over time, tubes can become dislodged or displaced, meaning they shift out of their original position.  This can happen from daily use, but can be more significant from excessive activity or if the tube gets caught on something.  To reduce risk of dislodgement, minimize heavy lifting or exercise that may strain the area.  You can also use products such as tubie clips and belts to keep everything in place.  Your care team should also verify your tube’s integrity during each visit.  This means making sure the tube is correctly placed and secure.  Be sure to speak up if you feel any new pain near the insertion site or in your stomach/intestine.  It is important to take care of these issues right away, before they cause other complications.

    Note: if you have a G-J tube and experience frequent vomiting, it can become dislodged internally.  Always report to a doctor experienced in G-J tubes if you have new pain after vomiting, especially in your throat or chest.  It can be evaluated via X-ray.

    hypergranulation

    Tubes that enter the stomach (PEG) or intestines (PEJ) directly through a hole in the abdomen (stoma) can develop hypergranulation.  Granulation is a type of healthy tissue that develops around any fresh wound.  Hypergranulation is unhelpful tissue that can develop around a wound that is unable to close due to a foreign body such as a tube.  It can look bumpy, swollen, red, shiny or wet, and may bleed easily.  Although not a big health risk, it can be painful.  Hypergranulation can be caused if the tube moves around too much, puts too much pressure on the stoma, if the stoma is wet, or if there is an infection.  To avoid it, make sure your tube is the right size, that it is secured to avoid movement, and keep the area clean and dry.

    More information here.

    infection

    Any medical device that enters through a hole in your skin can be an access point for infection.  It is therefore crucial to keep the area clean and dry.  An infected stoma can be red, swollen, painful, or have an abnormal discharge or abscess.  Tell your care team if you think you may have an infection so that it can be treated right away with antibiotics.  To prevent infection, always wash your hands well before touching your tube or stoma.  Wash the area with soap and water daily, and then keep it dry and open to the air.  Address any skin irritation or leakage and keep the site secure so the tube doesn’t move around.  

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  • Tubie Tips: gear

    by Ariela Paulsen December 23, 2021June 21, 2022

    Getting a feeding tube comes with a lot of baggage — literally! Administering feeds requires a lot of gear. There…

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  • Your First Feeding Tube: what to expect

    by Ariela Paulsen December 16, 2021June 21, 2022

    No one expects to end up with a feeding tube, and your first experience can come with a large learning…

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  • Emily’s Care Team Tips

    by Ariela Paulsen November 24, 2021November 24, 2021

    As we explored building up a care team last month, we chatted with Co-Founder Emily Levy.  She has recently made…

    1 FacebookTwitterPinterestEmail
  • 5 Tips for Chronic Pain

    by Ariela Paulsen July 29, 2021July 29, 2021

    Living with chronic pain is exhausting.  It’s so much more than just the sensation of pain — it’s the part…

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  • 4 Ways to Prepare for a PICC Placement

    by Ariela Paulsen June 23, 2021June 23, 2021

    Going into a medical procedure is always a little scary.  The best way to minimize fear and anxiety is to…

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  • Dealing With Diabetic Eye Disease

    by Ariela Paulsen June 1, 2021June 1, 2021

    Diabetic eye disease refers to a number of diseases that may occur if you’ve been diagnosed with diabetes. When you…

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  • Launch of a New Product Line: Secondary Catheter Securement Device

    by Ariela Paulsen March 19, 2021March 21, 2021

    Mighty Well creates comfortable as well as functional apparel and accessories for people living with medical devices, such as PICCs,…

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  • Vaccine Complications With Chronic Illness

    by Ariela Paulsen March 10, 2021March 31, 2021

    The COVID-19 vaccine is finally here, and ramping up quickly.  More than two million doses are being administered daily, expected…

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  • 4 Tips For Reducing PICC Line Pain

    by Ariela Paulsen March 3, 2021March 3, 2021

    Getting a PICC line (Peripherally Inserted Central Catheter) means opening yourself up to new treatment options and healing!  It can…

    1 FacebookTwitterPinterestEmail
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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

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Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

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We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
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Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
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You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
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We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
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The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

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I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
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One positive that came out of the pandemic was tha One positive that came out of the pandemic was that many of us were able to have flexible working arrangements. As more states lift restrictions, heading back to work after months of working from home can be a huge adjustment for so many of us. Allowing time in our schedules for commuting, brushing up on our social skills, and making sure to have access to our medical supplies are just a few things we need to prepare for.

📸 Mighty Well ambassador @ameliablackwater headed back to the classroom last week and is working on finding a happy balance of working, socializing, and finding time for herself. 

If you've returned to work, what was the hardest part about making the transition back? 
.
.

#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Autism #WFH #RemoteWork #Telecommute #MightyWellMask #Pandemic
Before you move forward always be sure to check th Before you move forward always be sure to check the price tag 💵
.
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#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #MentalHealth #MentalHealthAwareness #Anxiety #Depression #PTSD
Life is full of uncertainties. But there will alwa Life is full of uncertainties. But there will always be a sunrise after every sunset 🌅

"The only certainty in life is uncertainty. I challenge you to embrace it. Even if it's just for a bit" ~@kali_rarerootedwarrior ☺️

Featuring: The Mighty Pack & Undefeated Hat
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Gastroparesis #EDS #MastCellDisease
We really love this message from @lizandmollie. In We really love this message from @lizandmollie. In fact, we couldn't have said it better ourselves 🤗 Chronic illness is filled with ups and downs and everyday will look a little different. Know that you're doing your best even on the days that you are flaring, in pain or fatigued. Remember that we are here to support you on the good days, the bad days and all the ones in between 💚 
. 
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #ChronicFatigue #MultipleSclerosis #Lupus #SickleCellAnemia #Endometriosis #POTS
Going into a medical procedure is always a little Going into a medical procedure is always a little scary. The best way to minimize fear and anxiety is to go in as prepared as you can! If you are feeling nervous for an upcoming PICC line placement procedure, head to our latest blog (link in bio) for some confidence boosting tips so you can feel ready to go! 

📷 Friend in the Fight @zebrajemma loves her PICCPerfect PICC Line Cover. It keeps her PICC line in place without adhesives and is so comfortable 🤗
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #IVIG
You can hardly wait to tell everyone what happened You can hardly wait to tell everyone what happened and  suddenly start talking and realize you don't know where the story is going...has this happened to anyone else lately 🙋‍♂️We've been there! Brain fog, perhaps the most universal aspect of illness, is exhausting. Cognitive disorders can be frustrating but take solace in knowing that you are not alone. We've all experienced that foggy feeling 🌫 and although it's not permanent, it can arrive quickly and definitely overstay its welcome. 

Looking for a little help getting the fog to lift? Our Brain Fog Fix Planner is more than just a reminder system. It includes space to track daily symptoms, hydration, thoughts and moments of gratitude amidst the daily challenges and is brought to you with input from our Friends in the Fight® Click the link in our bio to find out more. 
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #BrainFog #ChronicFatigue #CognitiveDisorder
We've got your back! Our Mighty Pack is the first We've got your back! Our Mighty Pack is the first medical backpack designed by patients, for patients. Our backpack is perfect for wheelchair users, as it has multiple strap locations to allow for flexibility. Nobody needs to know that you are carrying or wearing your essential medical devices and supplies. As patients ourselves, this is a product that we wish we’d had! 💪💚 Best of all this can be purchased with most FSAs (Flexible Spending Accounts) and HSAs (Health Savings Accounts) Click on the photo to take a look inside the Mighty Pack. 

📹 We are all smiles over this video of Mighty Well ambassador @rebellious_story & her dog Sherlock 😍
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #DiabeticLife #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #TubeFed
The school year is quickly coming to a close and w The school year is quickly coming to a close and we wanted to send a Mighty shout out to all the students who worked so hard this year despite the challenges of COVID 🙌 We know that it was a challenging year with limited in-person learning, social distancing, and the requirement of face masks. We are so proud of all of you and you should be too! 💚

📸 Featuring The Mighty Well Mask
.
.
 #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #KeepFighting  #SupportSystem #PICC #PICCLine #Port #Pandemic #HomeSchool #Graduation #SocialDistancing
I’m proud to be trans and I’m proud to be disa I’m proud to be trans and I’m proud to be disabled — because you can’t put a boundary on being yourself ~@thedisabledhippie
 
Happy Pride Month to all of our Friends in the Fight in the LBGTQIA+ community 🏳️‍🌈
.
.
#MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #InvisibleIllness #AutoimmuneDisease #ChronicPain #ChronicIllness #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #AdaptiveWear #Pride #LBGTQ #Transgender #LoveisLove #NonBinary #BiSexual #GayPride #Instalove
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