Mighty Well
  • Shop
  • Home
  • Friends in the Fight
    • Friends in the Fight

      Making the Invisible Visible

      December 16, 2020December 16, 2020

      Friends in the Fight

      Holiday Wishlist

      December 4, 2020December 4, 2020

      Friends in the Fight

      3 Ways to Recognize When Someone Needs Support

      December 1, 2020December 1, 2020

      Friends in the Fight

      5 Ways to Give Support to Someone You…

      November 23, 2020November 23, 2020

      Friends in the Fight

      How to Safely Celebrate the Holidays

      November 21, 2020

  • Chronic Illness
    • Chronic Illness

      When Feeling Better Doesn’t Feel Good

      January 13, 2021January 13, 2021

      Chronic Illness

      POTS and ME Awareness: A Surprising COVID-19 Outcome

      January 6, 2021January 6, 2021

      Chronic Illness

      Decorating Your Mighty Pack

      December 23, 2020December 23, 2020

      Chronic Illness

      Making the Invisible Visible

      December 16, 2020December 16, 2020

      Chronic Illness

      Holiday Recipes

      December 9, 2020December 9, 2020

  • General Wellness
    • General Wellness

      Looking Towards the New Year With Hope and…

      December 30, 2020December 30, 2020

      General Wellness

      Holiday Recipes

      December 9, 2020December 9, 2020

      General Wellness

      3 Ways to Recognize When Someone Needs Support

      December 1, 2020December 1, 2020

      General Wellness

      How to Safely Celebrate the Holidays

      November 21, 2020

      General Wellness

      Introducing: Limited Edition Mighty Well Masks

      November 18, 2020November 19, 2020

  • Shop
  • Home
  • Friends in the Fight
    • Friends in the Fight

      Making the Invisible Visible

      December 16, 2020December 16, 2020

      Friends in the Fight

      Holiday Wishlist

      December 4, 2020December 4, 2020

      Friends in the Fight

      3 Ways to Recognize When Someone Needs Support

      December 1, 2020December 1, 2020

      Friends in the Fight

      5 Ways to Give Support to Someone You…

      November 23, 2020November 23, 2020

      Friends in the Fight

      How to Safely Celebrate the Holidays

      November 21, 2020

  • Chronic Illness
    • Chronic Illness

      When Feeling Better Doesn’t Feel Good

      January 13, 2021January 13, 2021

      Chronic Illness

      POTS and ME Awareness: A Surprising COVID-19 Outcome

      January 6, 2021January 6, 2021

      Chronic Illness

      Decorating Your Mighty Pack

      December 23, 2020December 23, 2020

      Chronic Illness

      Making the Invisible Visible

      December 16, 2020December 16, 2020

      Chronic Illness

      Holiday Recipes

      December 9, 2020December 9, 2020

  • General Wellness
    • General Wellness

      Looking Towards the New Year With Hope and…

      December 30, 2020December 30, 2020

      General Wellness

      Holiday Recipes

      December 9, 2020December 9, 2020

      General Wellness

      3 Ways to Recognize When Someone Needs Support

      December 1, 2020December 1, 2020

      General Wellness

      How to Safely Celebrate the Holidays

      November 21, 2020

      General Wellness

      Introducing: Limited Edition Mighty Well Masks

      November 18, 2020November 19, 2020

Mighty Well

Chronic IllnessFeaturedFriends in the FightMedical Devices

Feeding Tube Awareness Week: Kayla’s Story

by Allie Cashel February 13, 2020February 13, 2020
written by Allie Cashel
Feeding Tube Awareness Week: Kayla’s Story

Happy Feeding Tube Awarenesses Week! This year marks the 10th anniversary of this important week, an opportunity to reflect on the life-saving benefits of feeding tubes for so many of our Friends in the Fight. To commemorate Feeding Tube Awareness Week 2020, we are excited to share Kayla’s story with you today. 

We first connected with Kayla after our 2019 Mighty Pack giveaway with our friends at Kitchen Blends. Kayla lives with a feeding tube, and completed this interview from the ICU last week, so we are extra grateful to her for sharing her story with our community! Check out a few highlights from our conversation below and read on to learn how you can enter our Feeding Tube Awareness Giveaway below! 

What is your diagnosis and how does it impact your day to day life?

I was born with repertory problems and Ehlers-Danlos Syndrome and eventually developed Gastroparesis. Every day, I have to think about the medications and treatments I need. I have make sure I’m always extra prepared when I leave my home – and I think that’s something most people don’t understand.

What is one thing you wish people better understood about life with a feeding tube?

Life with a feeding tube isn’t the end of a healthy diet, in fact it’s the start of one! It doesn’t have to be plain meals that resemble baby food either, there are more and more ways to eat “normally” even when on a feeding tube. 

After winning the last Mighty Well and Kitchen Blends giveaway, how have you felt an impact on your life?

It’s been great! The Mighty Pack is an incredible tool. I’ve never had a I’ve never had a bag designed for my medication as well as all my other necessities.  It’s so much easier (and cuter) to be carrying around my medications and devices without it all getting in the way. Kitchen Blends also changes how I eat with a tube! The meals are so much closer to a “normal meal” Its nice to be able to pick out a chicken “dinner”; it makes everything feel more normal. 

Why do you think Feeding Tube Awareness Week Giveaway?

There is no better time for this giveaway that Feeding Tube Awareness Week! Both Mighty Well and Kitchen blends have created such amazing tools for those living with a tube. The everyday feel of the products makes a huge difference in how you feel about your illness. 


Thank you Kayla for sharing your thoughts and story with our community! There’s still time to enter! Check out the details in our Instagram Post below.

View this post on Instagram

Happy Feeding Tube Awareness Week! 💪💚 Been thinking about getting The Mighty Pack? – Here's your chance 🙌 Mighty Well has teamed up with @mykitchenblends to help kick off their 10th anniversary with a 5 day giveaway! For the first day of the giveaway 2 cases of Kitchen Blends (flavors of choice), 10 syringes, and a Mighty Pack will be given away to one lucky winner! 🍀 Enter for your chance to win: ➡️Follow @mykitchenblends and @mightywell_ on IG ➡️Like this post. ➡️Tag a fellow #tubie or Friend in the Fight below in the comments! Every friend you tag acts as a new entry! Good luck! 🤞(see official rules @mykitchenblends) . . #MightyWell #YouAreMighty #FriendsInTheFight #LiveMightyWell #Undefeated #Community #Health #Wellness #ButYouDontLookSick #InvisibleIllness #ChronicPain #ChronicIllness #ChronicIllnessWarrior #LymeDisease #LymeWarrior #Spoonie #SpoonieLife #SpoonieCommunity #LivingwithChronicIllness #Crohns #InfusionPump #MedicalBackpack #Gastroparesis #EnteralNutrition #Wheelchair #Tubefeeding #MedicalSupplies #KitchenBlends #feedingtubeawarenessweek

A post shared by Mighty Well (@mightywell_) on Feb 10, 2020 at 10:40am PST

0
FacebookTwitterPinterestEmail
Allie Cashel

previous post
Valentine’s Day Special: a story from Mighty Well co-founders Emily and Yousef
next post
How to be a True Friend in the Fight: Supporting Friends & Family with Chronic Illness

You may also like

Top 3 Tips for Conversations With Your Doctor

June 11, 2019

Living with Lupus

May 20, 2019

Creating Meaning and Purpose While Living With Chronic...

December 5, 2016

PICC Line vs. Central Line: Weighing Your Options

October 13, 2016

Travel Like a Pro – Top Tips from...

December 9, 2019

Holiday Wishlist

December 4, 2020

Being Ill in Any Way Is Better When...

June 8, 2017

Accepting the Bad Days with Chronic Illness

March 20, 2018

Mighty Well & Global Lyme Alliance – Fighting...

March 18, 2019

Wishes, Granted: Stories from Our Friends in the...

January 3, 2020

Leave a Comment Cancel Reply

Save my name, email, and website in this browser for the next time I comment.

About Us

Hi, We're Mighty Well.

The mission of Mighty Well is to help patients and their caregivers turn sickness into strength. We are leading the global charge that changes the perception of patients from victims to fighters. We do this by improving the experience of being a patient. We create the products we wish we’d had: functional and stylish apparel and accessories that you can wear with confidence - and content that can help you get through the good times and the bad. It’s wellness you can wear.

Keep in touch

Facebook Twitter Instagram

Instagram

No images found!
Try some other hashtag or username

Recent Posts

  • When Feeling Better Doesn’t Feel Good

    January 13, 2021
  • POTS and ME Awareness: A Surprising COVID-19 Outcome

    January 6, 2021
  • Looking Towards the New Year With Hope and Self Love

    December 30, 2020
  • Decorating Your Mighty Pack

    December 23, 2020
  • Making the Invisible Visible

    December 16, 2020

Categories

  • Adaptive Wear
  • Chronic Illness
  • Featured
  • Friends in the Fight
  • General Wellness
  • Healthy Work Environments
  • Lyme Disease
  • Medical Devices
  • Mightier Together
  • Mighty Models
  • PICC Line
  • Popular Posts
  • The Undefeated
  • Treatment and Care
  • Uncategorized

Tags Cloud

Active Lifestyle Adulting Best Fit for Your Lifestyle Be Your Own Advocate blm Chronic Illness coronavirus coronoavirus covid-19 Disabilities Dysautonomia Family Feeding Tubes Fibromyalgia Gastroparesis holidays invisible illnesses Living Mighty Well Living With a PICC Living with a Port LLMD lyme disease Lyme Into Lemonaid Lyme Literate Doctors mental health Mental Illness mighty mask Mighty Pack mighty well mask Misdiagnosed Mom with Lyme New Years Organization Tips PICC PICC line cover PICC Line Dressing Change PICCPerfect PICC Placement POTS Prevention Self-love Support Systems TPN trans black lives matter Working With a PICC Line

Our Story

Mighty Well - Founder - Emily Levy - Our Story

 

It all started with a cut off sock, a cute hockey player, and an 8 AM finance class. Oh, and a PICC Line. That moment inspired us to launch our first product, the PICCPerfect PICC Line Cover.

 

We know it stinks to feel defined by a diagnosis or feel like just a name on a doctor’s chart. Sounds like you? Read how our founder turned sickness into strength.

Recent Posts

  • When Feeling Better Doesn’t Feel Good

    January 13, 2021
  • POTS and ME Awareness: A Surprising COVID-19 Outcome

    January 6, 2021
  • Looking Towards the New Year With Hope and Self Love

    December 30, 2020

Join the Fight

Mighty Well's Facebook Page

Find Us on Instagram

No images found!
Try some other hashtag or username
  • Facebook
  • Twitter
  • Instagram

Mighty Well © 2018 All Rights Reserved


Back To Top