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Blog: Living Mighty Well

Why I Cancel Plans Because of My Chronic Illness

 They say that tomorrow is another day, but with chronic illness, you are never going to know how you feel day to day. That is why we sometimes have to cancel, reschedule, or just put our hand up and say ‘not today’....
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Creating Meaning and Purpose While Living With Chronic Illness

Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence. Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience....
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My Story About Lyme Disease

While working nights at the clinic there would be moments where my mind would go blank in the middle of a sentence. I began struggling to remember words as simple as “scissors”. I thought I was just adjusting to working overnights....
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Why I Have Chosen to #LiveMightyWell

Recently, I was reminded on facebook that it’s been three years since my initial Chronic Lyme disease diagnosis. I had just returned from teaching entrepreneurship in Rwanda with Babson College and my doctor called me to tell me that as suspected, my Lyme and co-infections tests came back positive (after an initial false negative from the traditional CDC test)....
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Why I Am An Open Book About My Chronic Illness

Even before I found that I had Chronic Neurological Lyme Disease and Co-Infections, I always felt alone. I knew something was medically wrong with me, but no doctor could figure it out. Going through high school feeling like something was “extra” wrong with me was just like a brick being dropped on my already pounding head....
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How To Best Keep Track of Your Medications

  Right before my sophomore year of college, I went from being a carefree college student to someone who had to manage anywhere between 15 and 52 pills, supplements, and intravenous medications to push through a PICC line (Peripherally Inserted Central Catheter). This was right after I was diagnosed with Chronic Neurological Lyme disease and co-infections. My friends call me a “Professional ...
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Spoonie Stories: It never rains forever and the sun always comes out

Mikayla is no stranger to chronic illness. She gives us a little window into her world, opening up about everything from the hardest part of treatment, to frustration with doctors, to her personal super hero. “She’s been through more Hell then you’ll ever know. But, that’s what gives her edge… You can’t touch a woman who can wear pain like the grandest of diamonds around her neck.”...
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Spoonie Stories: How You Can Raise Money for Lyme Treatments

My name is Heather. And this is my story.... I have been ill for many years, being diagnosed with multiple things, from fibromyalgia, to arthritis, IBS to TMJ... But this past summer (2015) everything got 10x worse. After many months of seeing (even more) specialist after specialist, I made it to a Lyme Literate Medical Doctor who is over 3-hours away from me. After a ton of test results, I was ...
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