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Blog: Living Mighty Well

5 Ways My Illnesses Have Made Me Stronger

My name is Emily Pierri. I am 17 years old, and I have been chronically ill for 8 years. My diagnoses are Type One Diabetes, Endometriosis, ARD (Adhesion Related Disorder), POTS (Postural Orthostatic Tachycardia Syndrome), Gastroparesis and MCAS (Mast Cell Activation Syndrome). One of the hardest things about living with multiple chronic illnesses is the constant internal battle to stay strong ...
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Learning to Love Your Tube

My name is Gracie Gardner, and I'm 16 years old, living with Idiopathic Gastroparesis. Living with this disorder is definitely not easy to cope with. I’ve had a PICC line along with countless NJ tubes (Nasojejunal feeding tube) and several NG's (nasogastric tube). One of the most difficult aspects of having life-sustaining tubes stuck to your face is that it comes with a constant fear of ...
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My Search for a Diagnosis - and for the Support of the Doctors

Over the course of the last five months, as a mere teenager, I've been diagnosed with a number of new chronic illnesses: Dysautonomia (POTS), Chronic Fatigue Syndrome and Gastroparesis....
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Spoonie Stories: A Stronger, More Confident Me

"My diagnosis date I remember not as the day my life became sealed with an expectation date, but as the day I truly started living. Since stepping down from my career I have become a support group leader, patient advocate, public speaker, and illness blogger. These new ventures have opened incredible doors in my life and brought about tremendous changes in myself as an individual. I am now a ...
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Spoonie Stories: Living with Gastroparesis & Feeding Tubes

My name is Shannon, I’m 22, and I’ve suffered from a chronic illness my whole life. I have Gastroparesis, which causes the muscles and nerves in the stomach to not function properly, causing my stomach to not empty properly. I also have dysmotility of the small intestine causing even further GI problems. I have had numerous NG tubes, NJ tubes, a GJ tube and I have had my second J-tube for almost ...
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Spoonie Stories: Advocating for People with Disabilities

Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story....
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