Living Mighty Well

Top Favorite Finds From Oley 2017 Conference

At this year's Oley Conference, the Mighty Well team had the opportunity to connect with potential partners, who share a socially conscious mission to not only improve the patient’s lifestyle, but also to aid caregivers in giving the most supportive care possible-- similar to our mission of showing appreciation for caregivers, and “friends in the fight! ”...
Read More

Learning to Love Your Tube

My name is Gracie Gardner, and I'm 16 years old, living with Idiopathic Gastroparesis. Living with this disorder is definitely not easy to cope with. I’ve had a PICC line along with countless NJ tubes (Nasojejunal feeding tube) and several NG's (nasogastric tube). One of the most difficult aspects of having life-sustaining tubes stuck to your face is that it comes with a constant fear of ...
Read More

Common Truths Those Who Have A Feeding Tube Wish Others Would Understand

A feeding tube isn’t a tool of convenience nor is it a sure sign that someone is terminally ill. A child doesn’t get a feeding tube because he or she is a picky eater, either, there are many underling factors. These are just a few common misconceptions people have when they see someone with a feeding tube. A feeding tube is a life-saving medical device that tends to make others uneasy. It’s OK to ...
Read More

Spoonie Stories: Living with Gastroparesis & Feeding Tubes

My name is Shannon, I’m 22, and I’ve suffered from a chronic illness my whole life. I have Gastroparesis, which causes the muscles and nerves in the stomach to not function properly, causing my stomach to not empty properly. I also have dysmotility of the small intestine causing even further GI problems. I have had numerous NG tubes, NJ tubes, a GJ tube and I have had my second J-tube for almost ...
Read More

Posts by Topic

see all