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Blog: Living Mighty Well

Lessons Learned on the Road to Acceptance

My name is Emmy, and I’m an 18 year old battling Systemic Arthritis, along with other autoimmune diseases, Mast Cell Disease, and more. Back in 2014, I went from being a healthy kid, about to start her freshman year at a new high school, to a girl I no longer recognized. The road to finding out the cause of my illness has been long and grueling. Even years later, I still have more questions than ...
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Learning to Love Your Tube

My name is Gracie Gardner, and I'm 16 years old, living with Idiopathic Gastroparesis. Living with this disorder is definitely not easy to cope with. I’ve had a PICC line along with countless NJ tubes (Nasojejunal feeding tube) and several NG's (nasogastric tube). One of the most difficult aspects of having life-sustaining tubes stuck to your face is that it comes with a constant fear of ...
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How The Spoonie Community Taught Me to Love My Life, Myself & My Flaws

Katie shares how the spoonie community has not only given her love and support, but also the courage to open up about her battle with Chronic Neurological Lyme Disease. She encourages all chronic illness fighters to overcome the fear of judgment and reveal their journeys to others. Read her blog below: ...
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How My Business Helped My (and others') Lyme Disease

The journey nearly killed me before the disease could; daily I searched for purpose and happiness in the oddest of places. I was feeling more at home than ever in a hospital room, in Madison, Wisconsin, than at home in my bed, it seemed safe, I didn’t feel so alone. It began with a tick bite in Northern Wisconsin, July 3rd, 2010....
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Christina's 3 Tips For Keeping Your PICC Dry in the Shower

Christina Doherty is probably one of the “illest” people I’ve spoken to! From handling EDS and its symptoms while blogging on a weekly basis, to designing her own jewelry and paintings, this woman is a real superhero! Christina posts videos on YouTube that she wishes she had when she was first diagnosed with EDS as well as videos about what a normal day for an EDS patient looks like. Since the ...
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5 Facts about Lyme that your Friends and Family may not know (Until Now)

Sara F has had Lyme for about ten years now, but didn’t have a confirmed diagnosis until the beginning of December 2016! Can you believe it? Unfortunately, many individuals go through this situation. For those who may not know, Lyme disease is one that is living under the radar--there are so many patients out there who have it, but are not correctly diagnosed until much later on....
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