Living Mighty Well

Spoonie Stories: A Stronger, More Confident Me

"My diagnosis date I remember not as the day my life became sealed with an expectation date, but as the day I truly started living. Since stepping down from my career I have become a support group leader, patient advocate, public speaker, and illness blogger. These new ventures have opened incredible doors in my life and brought about tremendous changes in myself as an individual. I am now a ...
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Spoonie Stories: Blankets Hugs for Kids

  My name is McKenna, I am 14 years old. I have battled chronic illnesses since the age of 8. I have Fibromyalgia, Hashimoto's, PCOS, VCD , Chronic Migraines, MTHFR Gene, Hypertension and high heart rate, Asthma, a benign tumor on my liver, & other undiagnosed things. After going through/still going through many tests, procedures, ER visits, I wanted to help other people like me. I love anything ...
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Spoonie Stories: Coming to Terms With Your Disability

February 22, 2015 | Lian Najami: Haifa, Israel It all started eight years ago; I was running on the track when I was no longer able to lift my knees high enough. I couldn’t understand what was wrong with me, what had happened to my body, or why, all of the sudden, I started losing my balance. I scheduled a meeting with a doctor, more specifically, a neurologist. He admitted me to the hospital, a ...
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10 Things To Know When Someone In Your Life Has Lyme

So someone you know is sick with Lyme disease. It could be a friend, a family member, a significant other or just an acquaintance. Whoever it is, you’ve got some questions.  Or maybe you don’t, but you want a better idea of what the heck is going on. This entry will hopefully offer some explanation, and can probably be applied to a variety of chronic illnesses. Whether you or a loved one has been ...
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Spoonie Stories: Advocating for People with Disabilities

Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story.Miranda has 68 formal diagnoses including Ehlers Danlos syndrome, Dysautonomia, POTS, MCAD and Gastroparesis. Here is her story....
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Spoonie Stories: No One Believed I Had Lyme Disease

  I knew it! I knew it all along. I knew there was something wrong with me, but no one believed me. My name is Lindsey Collins and I have Lyme disease. Two years ago, I went to Camp Fuller; it is a sleep-away camp in Rhode Island that I attended for three years. There is nothing I love more than sailing on the pond, hanging out with friends and being surrounded by nature. One day in the dining ...
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