Living Mighty Well

My experience at medcomp

Recently, I was fortunate enough to be able to speak to the employees of MedComp and MarTech in Harleysville, PA, about understanding the patient perspective of long term vascular access and management (yes, this is a topic I geek out over!) I believe it is important for the manufacturers and distributors of medical device companies to understand the perspective of the patients they work with. ...
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Tips For Living The Port Life

 Hey, there! My name is Aubrey Winkle and I am a senior at UT in Austin. I have Lyme Disease and postural orthostatic tachycardia syndrome (POTS) and as a result, have a Port for my treatments. I do 4 hours of IV infusions every day through my Port. I have had my port for about 8 months now and it has become such a part of my life I barely even notice it anymore. I know it may seem like a big ...
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How My Business Helped My (and others') Lyme Disease

The journey nearly killed me before the disease could; daily I searched for purpose and happiness in the oddest of places. I was feeling more at home than ever in a hospital room, in Madison, Wisconsin, than at home in my bed, it seemed safe, I didn’t feel so alone. It began with a tick bite in Northern Wisconsin, July 3rd, 2010....
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Weakness Is Not Quitting

Waking up with a chronic illness every day is the usual set of problems, the symptoms may change but the limitations are fairly consistent. The beginning and end of the day are hardest for me. When I wake up, I know I have another day of the same fight, the same disease, and when I go to bed I review a day in my head that wasn’t what I wanted it to be. This cycle of monotony is enough to tear ...
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Spoonie Stories: Join the Lyme Community!

This is me: I didn’t see the tick bite or a bulls-eye rash (less than 50% of Lyme patients do).  After, many different symptoms started showing up, many different doctors and specialists gave me meds to mask my symptoms. I was misdiagnosed with Lupus...This caused a delay in proper treatment for me, as I was put on steroids (which feed Lyme) for Lupus... Through a Lyme lab, about 5 years ago, I ...
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