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Blog: Living Mighty Well

Creating Meaning and Purpose While Living With Chronic Illness

Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence. Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience....
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A Thank You Note To My Nurses - Mighty-Well

Dear Every Nurse Who Has Ever Taken Care of Me, Some of my doctors don’t even know my name, but many of you willingly send me messages to check in on me. What a difference?! My friends call me a “Professional Patient” because my pharmacist knows me by name, I am always going to my next doctor's appointment, and organizing my weekly medication takes an hour every Sunday....
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My Story About Lyme Disease

While working nights at the clinic there would be moments where my mind would go blank in the middle of a sentence. I began struggling to remember words as simple as “scissors”. I thought I was just adjusting to working overnights....
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The Art of Storytelling in Chronic Illness

Dana was diagnosed with myelodysplastic syndrome at the age of 18. She was a young, artistic, field hockey player that was just hit with a hard diagnosis. She attended a talk with a cancer survivor when her family member connected her with Dr. Angela Cooke-Jackson. Dr. A thought it would be helpful and fulfilling if Dana shared the story of her treatment. Dr. A worked at Emerson College and knew ...
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Why I Am An Open Book About My Chronic Illness

Even before I found that I had Chronic Neurological Lyme Disease and Co-Infections, I always felt alone. I knew something was medically wrong with me, but no doctor could figure it out. Going through high school feeling like something was “extra” wrong with me was just like a brick being dropped on my already pounding head....
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5 Insider Tips for PICC Patients from PICC Nurses

PICC nurses have a ton of valuable information for their patients. After speaking with dozens of Vascular Access nurses in the National AVA Conference (September 2016 - Disney, Florida), we summarized the top 5 insider tips for patients doing intravenous treatments!  “AVA is the Association for Vascular Access, founded to support and promote the specialty of vascular access”. ...
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Spoonie Stories: Coming to Terms With Your Disability

February 22, 2015 | Lian Najami: Haifa, Israel It all started eight years ago; I was running on the track when I was no longer able to lift my knees high enough. I couldn’t understand what was wrong with me, what had happened to my body, or why, all of the sudden, I started losing my balance. I scheduled a meeting with a doctor, more specifically, a neurologist. He admitted me to the hospital, a ...
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Spoonie Stories: It wasn't just "a little arthritis"

Lyme Disease hit me unaware.  For a couple years my knees were swollen, stiff and painful. That didn’t stop me from walking the dogs or kayaking, but the pain made everything a chore instead of fun. I was told it was arthritis and to lose weight and do knee exercises.  After  those couple years of knee pain the pain gradually went to my hips, back, shoulders and neck.  Then it gradually ...
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