Living Mighty Well

President Trump’s 2018 Budget: What’s Getting Cut in the Health Department?

On May 23, the Trump administration released his full 2018 budget proposal, which details many of the changes that may be made to the United States federal government's spending.  Outrage from politicians, mayors, outside parties, and citizens followed the release of these plans.  According to the Washington Post, the Environmental Protection Agency, the State Department, and the Agriculture ...
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Being Ill in Any Way Is Better When You Are Not Alone

 Jess shares how her "face-to-face" battle with mental illness has made her a stronger person. A few years ago, Jess would have told you, "my disorder has destroyed me." But after consciously confronting her illness head on and developing a caring support system, she no longer views her anxiety as a weakness, but as a strength. Read her blog below: ...
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My Search for a Diagnosis - and for the Support of the Doctors

Over the course of the last five months, as a mere teenager, I've been diagnosed with a number of new chronic illnesses: Dysautonomia (POTS), Chronic Fatigue Syndrome and Gastroparesis....
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Weakness Is Not Quitting

Waking up with a chronic illness every day is the usual set of problems, the symptoms may change but the limitations are fairly consistent. The beginning and end of the day are hardest for me. When I wake up, I know I have another day of the same fight, the same disease, and when I go to bed I review a day in my head that wasn’t what I wanted it to be. This cycle of monotony is enough to tear ...
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5 Ways to Stop Being Frustrated by Your Limitations

Hi, hello there! Have you ever watched the movie “Kill Bill 2”? Do you remember the scene in which Beatrix Kiddo desperately tries to wiggle her toes? Well, that is kind of what I go through… EVERY. SINGLE. MORNING!! As I mentioned in my last post, I have a chronic illness in my peripheral nerve system and it has affected my muscles too. Physically speaking, I do have some limitations; I can’t ...
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Creating Meaning and Purpose While Living With Chronic Illness

Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence. Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience....
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A Thank You Note To My Nurses - Mighty-Well

Dear Every Nurse Who Has Ever Taken Care of Me, Some of my doctors don’t even know my name, but many of you willingly send me messages to check in on me. What a difference?! My friends call me a “Professional Patient” because my pharmacist knows me by name, I am always going to my next doctor's appointment, and organizing my weekly medication takes an hour every Sunday....
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My Story About Lyme Disease

While working nights at the clinic there would be moments where my mind would go blank in the middle of a sentence. I began struggling to remember words as simple as “scissors”. I thought I was just adjusting to working overnights....
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