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Blog: Living Mighty Well

Emily Levy

Emily Levy is a Lyme Warrior and advocate, professional patient, and a seasoned speaker who raises awareness on the patient perspective, chronic illnesses, and female entrepreneurship.
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Recent Posts

Why I Cancel Plans Because of My Chronic Illness

 They say that tomorrow is another day, but with chronic illness, you are never going to know how you feel day to day. That is why we sometimes have to cancel, reschedule, or just put our hand up and say ‘not today’....
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Creating Meaning and Purpose While Living With Chronic Illness

Being a Boss Lady is hard: Managing your business, other people, and a growing startup presence. Then add on top of that, managing your 3 IV infusions through your PICC line a day, oral medication, doctors appointments, a home care nurse, weekly blood works, and a slew of symptoms that seem to pop up at their convenience....
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A Multicultural Love Story With a Taste of Lyme

Here’s a story that will throw you through a cultural loop. My mother was born Irish Catholic and my father is an Ashkenazi Jew. I grew up in Rhode Island, USA, knowing that I was in some way Jewish, but I never celebrated that fact until I was given the gift of Birthright when I turned 18.   I fell in love with Israel and started to celebrate the fact that I was a Jew. From the moment I got back ...
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A Thank You Note To My Nurses - Mighty-Well

Dear Every Nurse Who Has Ever Taken Care of Me, Some of my doctors don’t even know my name, but many of you willingly send me messages to check in on me. What a difference?! My friends call me a “Professional Patient” because my pharmacist knows me by name, I am always going to my next doctor's appointment, and organizing my weekly medication takes an hour every Sunday....
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Pulse Therapy: A New Approach for Treating Lyme Disease

Think of a truck starting and stopping on a highway. Go-go-go and then it comes to a screeching halt. In essence, this is what Lyme Disease pulse therapy feels like. The clinical idea is to start and stop antibiotics to treat Lyme disease and co-infections. According to doctors, such as those in the Jemsek Clinic, this allows the body to have time to recover from the Lyme die off and it allows ...
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“Adulting” with Lyme Disease

This summer I was supposed to start “adulting.”...
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5 Reasons to Be Grateful For Your Chronic Illness

Chronic illness is definitely tough most days... However, it can also make you very grateful for what you do have. Since we have to live with it either way, we might as well make the best of it! Personally, having Lyme Disease and living with a PICC line has given me these 5 reasons to be grateful for my chronic illness. ...
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Why I Have Chosen to #LiveMightyWell

Recently, I was reminded on facebook that it’s been three years since my initial Chronic Lyme disease diagnosis. I had just returned from teaching entrepreneurship in Rwanda with Babson College and my doctor called me to tell me that as suspected, my Lyme and co-infections tests came back positive (after an initial false negative from the traditional CDC test)....
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